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Patricia Fox replied to the topic The inevitable…. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months, 1 week ago
I just participated in a webinar presented by the Compassion and Choices organization. They have an abundance of useful information that you may find useful: https://www.compassionandchoices.org
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Patricia Fox replied to the topic DEALING WITH OFEV side effects in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 7 months ago
I started on Esbriet when I was first diagnosed 2 years ago. I had horrible side effects – constant diarrhea and lost about 40 lbs – not good. I stopped for a while then my pulmonologist suggested I try OFEV. I have been on that for almost a year. I started with 150mg/2x/daily and continued to have severe diarrhea and continued to lose wei…[Read more]
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Patricia Fox became a registered member 2 years, 9 months ago
Hello Patricia, we are delighted to have you as a member of the pf forum. Welcome!