Forum Replies Created

  • Phil Maas

    Member
    June 25, 2024 at 2:32 pm in reply to: Ofev – diarrhea after some time?

    I started on OFEV nearly 5 years ago. For the first 4 to 5 months everything was fine, then I started having diarrhea and it hasn’t let up since. Sorry to be the bearer of bad news. However, not everyone reacts the same way, so perhaps it will abate soon.

    Phil

  • Phil Maas

    Member
    March 26, 2020 at 3:20 pm in reply to: Starting Ofev

    Charlene, in answer to your questions about OFEV.

    I was started on OFEV within two weeks of being diagnosed. In our initial meeting the doctor did not indicate a severity of the condition and I was so unprepared for the diagnosis that I forgot to ask. The doctor did not offer an explanation as to why he chose OFEV over Esbriet. I have been on OFEV for six months. The side effects have been minimal with the exception of diarrhea which did not began until I had been on the medication for four months. I am controlling the effects with Immodium. And in answer to your last question, I have the  IPF form. .