Forum Replies Created

  • Phyllis

    Member
    May 5, 2019 at 12:47 pm in reply to: Different Types of Fatigue for Patients with PF.
      Good afternoon!  I’m new to this forum but found this topic very interesting.  I’m not new though to IPF and Ofev.  It’s been about 3-3 1/2 years.  This topic of fatigue was very interesting to me.  I’m in the process of decreasing my antidepressant thinking that probably isn’t helping me with fatigue.  Don’t know what the decrease will do otherwise.  I’m doing this on my own.  I’m just tired of being tired.  I used to be a very active person and now some days I just don’t want to do much of anything, then the day is over.  The winter was most brutal and that about did me in.  I need warmth and sunshine.  I live in Ohio.  I’ve exercised for years and now I have a hard time even getting to the YMCA.  Although I do feel better when I go.   Especially if the sun is out.  I’ve always been a early morning person.  Not so much any more.  I’m not on oxygen as my level is good other than it dropped low after my 6 min walk last appoint.  But it made a good come back.  Hasn’t seemed to be a problem since.  Also a year and half ago I was diagnosed and now dealing with colitis issues as well and all the side effects that go with that.  My family have all gone to appoints with me in the past but I don’t think they fully understand or as long as I’m still up and going I’m ok.  I understand Laura’s concern from her daughter’s comment.  I just want to feel energized again if that’s even possible.  Thanks for letting me vent.  Phyllis