Biography

Name

Piet Potgieter
Nickname

piet-potgieter1576988077
Year of Birth

1944
Gender

Male
Location

South Africa
Relationship

Patient
Short Bio

Diagnosed January 2017. On Esbriet generic Pirfenex since June 2017. Supply running out in three days’ time and not possible to import any more as Esbriet has become available at an unaffordable price and medical aid will not pay. My condition stabelized in the 2.5 years I have used the generic.
Type of Diagnosis

IPF
Treatment / Medical Facility

Six monthly visits to pulmonologist
Current medication regimen

Esbriet generic Pirfidione (Pirfenex from Cipla, India)
Lung transplantation status

considering later
Supplemental Oxygen

no
Best advice for PF symptom management

Stay active as far as possible and lose weight if it is a problem!
Are you currently taking an anti-fibrotic medication?

yes
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

3 years, but probably longer before I was diagnosed.
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