Forum Replies Created

  • patrick rogers

    Member
    June 28, 2021 at 2:12 pm in reply to: Shortness of breath and normal oxygen reading

    Apparently we all have the same questions regarding oxygen levels and what appears to be available. My physical therapist says that although the blood has the high level. the rigidity of the lung tissue prevents it from being resupplied quickly and therefore results in the severe drop in level. The level returns but it simply takes longer. Makes sense to me but I have no solution.
    On a separate subject I have asked my doctor to read and comment on the Baylor study regarding Nexium and its possible positive effect on actually reducing the fibrosis in the lungs. He suggested that we start with 40 mg. to see if there is any effect. I plan to start tomorrow and will keep a diary in case there is any actionable result. I would like to know if anyone else has any experience with this treatment or has tried it. I’ll keep you posted on my results or lack thereof.

  • patrick rogers

    Member
    July 1, 2021 at 11:52 am in reply to: Shortness of breath and normal oxygen reading

    Bill I’m 82 years old and less worried side effects than I once was.  Nexium warnings are numerous and concerning so I asked my doctor to read and evaluate the Baylor Houston study.  He agreed to prescribe 40 mg. for an indefinite period and I’m on my third day.  So far no marked change.  In two weeks I have an appointment in Dallas at UTSW to be seen by a doctor working for John Fitzgerald.  Their goal is to remove the term “Idiopathic ” and seek a cause and alternative illness that, hopefully, can be cured.  I’ll share what I learn if anything.