Robert Carlson

Charlene,

You asked me how I clean my cannula.  I only clean the terminal end, and do this using warm soapy water.  With some water in the sink basin I immerse the end of the cannula and clean the outside with my fingers.  With the end of the cannula underwater, I quickly squeeze it repeatedly forcing soapy water to cleanse the inside (but ju…[Read more]

Charlene,

I don’t keep track of how often I change my cannula, but it is not very often, maybe 6-12 months.  I try to wash the terminal end at least weekly, or when it has been on the floor.  The soft (flexible) portion of the cannula stiffens with use (oxygen probably causes it) when it gets too stiff I replace it.  Otherwise, I see no reason to…[Read more]

This note is in response to Jaime’s initial question regarding phlegm.

I too have been plagued by excessive nasal congestion and viscous phlegm with resultant breathing and coughing problems.  While not a solution, I have found the use of saline nasal rinse very helpful in clearing my nasal cavity and throat of the congestive materials.  I use t…[Read more]

Steve Dragoo,

You made mention of Serrapeptase(4/30).  How is it that you happen to be taking Serrapeptase to help clear mucus?  I also have IPF and have problems with upper respiratory mucus.  I have found that using a saline solution to clear my sinuses and throat (4) or (5) times a day quite helpful.  For how long have you been taking Ser…[Read more]

@john-marshall
Sorry about this.  I thought I had a solution as a work around when working with Word, but it doesn’t work.  Once accepted by the Forum apparently the author of the note can’t delete it.  I tried.

@john-marshall,

John, you might have better luck when using Word if you do one of the following:

1. Compose your note in Word.
2. Save Word document as either, a. Plain Text (txt) or  b. Rich Text Format (RTF)
3. Copy your note from the newly formatted document (.txt or .rtf)
4. Paste into the Forum Response note.

Charlene,

I don’t know how you find the time, but thank you for what you are doing for the group who are trying to deal with PF.

Ref: Dealing with Phlegm

In the literature there are numerous mentions of a “dry cough” being symptomatic of PF, but not much about excessive phlegm.  I am one of those diagnosed with IPF who now experiences the pr…[Read more]

Charlene,

Ref: Dealing with Phlegm
I don’t know how you find the time, but thank you for what you are doing for the group who are trying to deal with PF.

In the literature there are numerous mentions of a “dry cough” being symptomatic of PF, but not much about excessive phlegm.  I am one of those diagnosed with IPF who now experiences excess…[Read more]