Forum Replies Created

  • Richard Phillips

    Member
    February 11, 2021 at 3:29 pm in reply to: GLPG1690 Clinical Trial

    Google GLPG1690 Clinical Trial this will tell you why the
    Trial was cancelled.

  • Richard Phillips

    Member
    February 11, 2021 at 1:03 pm in reply to: GLPG1690 Clinical Trial

    I also got the call. Will meet with coordinator next week. She informed me
    that a new study that started in January and they are recruiting new people
    to join at this time. There will only be 650 participants.The trial is in
    the third phase. Google WA 42293 by Roche for information on the trial

    Gatorrichard

  • Richard Phillips

    Member
    November 5, 2020 at 5:20 pm in reply to: GLPG1690 Clinical Trial

    >Charlene, I am not on the waiting list for transplant, still to healthy. I made my one year visit to for the study yesterday. I am going to continue in the study until the last enrollee finishes his last pills. They told me it could be
    another 2 years maybe sooner. My numbers are staying pretty steady. Don’t know
    if I am taking the placebo or the real thing. I am also taking Ofev my understanding is they are no longer taking people are taking the two medicines
    that on the market at this time.
    I was diagnosed 4 years ago this month. Only use oxygen when exercising or
    outside working went on Ofev the first month I was diagnosed. So with 4 years
    of Ofev and one year in the trial study seems like something is working. I don’t
    post must but check in weekly and have gained much info from this site. Keep
    up the good work I sometimes think I have more info than my Dr lol just from
    Reading the pulmonary fibrosis news site.

  • Richard Phillips

    Member
    October 29, 2020 at 4:48 pm in reply to: GLPG1690 Clinical Trial

    Just a note, I was diagnosed in Nov of 2016 stated on Ofev the same month. I enrolled GPLG study last Nov 2019. My numbers are quite stable. I am also enrolled in the

    University of Florida’s transplant program, to healthy for transplant right now, I am 74

    years old. Cannot tell if I am taking a placebo or not. Only on Oxygen when actually

    real active.