Richard Halderman
Forum Replies Created
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My self I have small bottles that fit in a hydration back pack to use when I am out and yes it helps keep my o2 levels at 90+. I run it on 3 and it does great. At home when I sit down and rest I run at 2.5. I only use as need Which is getting moer frequent. But to answer ‘yes’ ut does help.
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I was diagnosed in 2014 and am still in the moderate range. Text book longevity is not accurate. I will add you to my prayer list. It out of our hands now.
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I was diagnosed in 2014 at that time I read life expectancy was 2 to 4 years. At that time I realized I needed to get right with life and my creator. I settled it in my heart how this disease ended. No cure nothing. I realize this is a very devastating disease believe me I know. But I have maintained a relationship with my creator and my wife. We have been steering our lives in just that direction. I have come to the understanding the end of life is death, and I am very comfortable with that. It is my belief (I am in no way preaching) I have a life everlasting and more abundant waiting once I leave this existence and that is good enough.
Live with grace and die the same. Thanks for letting me ramble. -
I have been through the Rituximab infusion. Every 6 mo for 2 years and had no problem with the treatments. The main thing is it kills your immune system. You have to be very careful where you go and who you are around. My infusions were more for ANCA Vasculitis and it worked tremendously. Added benefit is it slows the IPF by killing your immune system.
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I was offered the option the first part of this year ad my 70th b/day was mid June and I would not be eligible after that. I researched the process and in light of the enormous cost,the %s of success longevity a post transplant and post care and forever being on a seeming covid lock down it just didn’t seem desirable to me. So I declined the opportunity. Good or bad I guess I’m committed to the path I’m on.
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I’m a 70 year old mele diagnosed in 2015 I live in Yakima Wa. and recieve treatment in Seattle Wa. about a 3 hr. drive. As far as I know there are no social support groups local. IPF is not bad as yet, I have limitations on activities but it what it is.
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I was diagnosed in 2015 and started OFEV in 2022. My p
PF is Idiopathic and at the start of OFEV I was in the moderate range. Unfortunately I could not tolerate it. After 5 months of starts and stops and loss of 45 lbs. due to gastrointestinal reactions had to finaly give up. Hopefully another med will come along that I can tolerate.