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Rand O'Brien replied to the topic Saw PF on xray now what in the forum Diagnosis Information and General Questions 1 month, 2 weeks ago
I would be worried if my PCP noted that IPF “could” be progressive, given all the literature out there. It is progressive, by all accounts I’ve seen. I didn’t catch where you live, but I’d get to a good BIG hospital for a full work-up. If near a place like Boston or Denver. Look up the top Pulmonary Hosp1tals via Google and go. The soon…[Read more]
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Rand O'Brien replied to the topic travel while on ofev in the forum Ofev (Nintedanib) 3 months, 2 weeks ago
Do you drink milk or use milk products? I have found they are a culprit, for me, with Ofev. Using lactic free milk does the trick. Just something to check out. I’m a retired therapist and used to work with HIV folks, 20y/o. , back during the days of large “cocktails” and severe diarrhea. They would take 2-3 Tbl. of ground whole husk psyl…[Read more]
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Rand O'Brien replied to the topic Choosing a Portable O2 concentrator for air travel in the forum Using Our Forums 1 year, 5 months ago
I have an Inogen 1 G5, on rec. of a friend of a friend. It works great. I’m out on trails, walking with my dog every afternoon and it keeps up with me. Two things to remember, in my understanding. 1. The numbers on the “output” are just numbers to tell an increase or decrease of O2. The don’t mean “liters/whatever.” 2. If you’re flying you…[Read more]
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Rand O'Brien replied to the topic High protein vegetarian meals. in the forum Healthy Recipe Sharing 1 year, 8 months ago
the Moosewood “family” of cookbooks have a wealth of good vegetarian recipes. Excellent and always work.
Rand O’Brien
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Rand O'Brien replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 2 years, 6 months ago
I’ve been taking the Amazon capsules, forgot which one, at present Zenwise for about 6 wks. Thecapsules look the same as the ealier bottle with the same emount of ECGC. Bottle recommendation is 2/day, I take 2 twice/day. About 2-3 wks. into them I had my first 97% on the Oximeter, usually running at about 95, sometimes down to 92. Consistently O2…[Read more]
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Rand O'Brien replied to the topic Just got approved for Ofev in the forum Ofev (Nintedanib) 2 years, 7 months ago
John,
I haven’t had problems if I’m off by a couple hours here or there. But that is me. I have a well known cast-iron stomach. Also, as I have said before, for me, using whole husk psyllium is helpful with diarrhea, which seems counter-intuitive. It’s something I learned from working with gay men back in the 90’s and early this cen…[Read more]
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Rand O'Brien replied to the topic IPF patients taking antifibrotic therapies Ofev or Esbriet had a 37% lower mortality risk than those not treated, a registry-based study says. in the forum Diagnosis Information and General Questions 2 years, 7 months ago
Piet, no one gets out of this alive; we all get our ticket. Some are just to better places as a destination. So….I work to just live life now to the best I can for myself. I’m never bored and as things get worse, as they assuredly will, I will find more and different things that fill my mind and soul. Just sayin’.
Rand O’Brien
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Rand O'Brien replied to the topic Laser Treatment. Whats going on? in the forum Using Our Forums 2 years, 10 months ago
I may have missed something…most probably….but I don’t understand what “laser treatement” is. What happens specifically during a laser treatment and how, then, is it helpful?
Rand O’Brien
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Rand O'Brien replied to the topic Public Fears Surrounding COVID-19 in the forum Pulmonary Fibrosis Awareness & Advocacy 2 years, 10 months ago
Hi Folks,
I think the hoarding is out of fear/anxiety. People are trying to feel “safe” when they have little control. We turn to food and necessities. The food supply is not affected and the chains are long to supply major markets. I’m in a retirement community so we are looking out for each other and limiting trips off campus. A little sto…[Read more]
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Rand O'Brien's profile was updated 2 years, 11 months ago
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Rand O'Brien became a registered member 3 years, 10 months ago