@robertah624
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Roberta replied to the topic The inevitable…. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months ago
So much of what has been written is almost the same as I would have written. I don’t fear death and quite comfortable with the reality of the inevitable. I struggle with leaving behind people who rely on me. I also am grateful that my death will not be a shock and those who need me have time to deal with that situation while I am still around. I a…[Read more]
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Roberta posted a new activity comment 3 months, 2 weeks ago
Thanks David. I wish you the best also. Do hope you get to see all grandchildren graduate from college. My goal was to see them all graduate from high school. Made that goal in June. I am 81 and have had a blessed life. I am amazed every day st how wonderful life can be
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Roberta posted a new activity comment 3 months, 2 weeks ago
Just finished my 3rd year since diagnosis. I have been on oxygen periodically for two years. Recently I have need to use it almost all the time
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Roberta and
David Reno are now friends 3 months, 2 weeks ago
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Roberta posted a new activity comment 3 months, 2 weeks ago
I’ve been having difficulty connecting with the group since joining two months ago. Now have connected. I have been bothered by a lot of runny nose. Think part of it is related to my 24/7 use of oxygen. Do others have this problem? Does anyone use a nasal spray? Does that help?
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Roberta posted a new activity comment 3 months, 2 weeks ago
Thank you
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I’ve been having difficulty connecting with the group since joining two months ago. Now have connected. I have been bothered by a lot of runny nose. Think part of it is related to my 24/7 use of oxygen. Do others have this problem? Does anyone use a nasal spray? Does that help?
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Roberta became a registered member 5 months, 3 weeks ago
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Welcome to the PF forums Roberta, we’re glad you found us.
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Thank you
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I’ve been having difficulty connecting with the group since joining two months ago. Now have connected. I have been bothered by a lot of runny nose. Think part of it is related to my 24/7 use of oxygen. Do others have this problem? Does anyone use a nasal spray? Does that help?
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Hi Roberta, I can’t speak to the runny nose, I have not started to use ox. I feel I am getting close. Just starting My 3rd year with IPF. How long have You been living with PF how long have You been on ox? Hoping You can get help with this group.
David-
Just finished my 3rd year since diagnosis. I have been on oxygen periodically for two years. Recently I have need to use it almost all the time
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As i said I feel that I am getting close to using ox. Do use a bottle or one of backpack type? Not sure what I can get by with. I can still walk a mile every day it is getting harder all the time. Do You use Ofev? My Wife’s Bro. has IPF He is going on his 6th. year. can’t say I will make that. There are so many types of PF every one is diff.I just…[Read more]
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Thanks David. I wish you the best also. Do hope you get to see all grandchildren graduate from college. My goal was to see them all graduate from high school. Made that goal in June. I am 81 and have had a blessed life. I am amazed every day st how wonderful life can be
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As i said I feel that I am getting close to using ox. Do use a bottle or one of backpack type? Not sure what I can get by with. I can still walk a mile every day it is getting harder all the time. Do You use Ofev? My Wife’s Bro. has IPF He is going on his 6th. year. can’t say I will make that. There are so many types of PF every one is diff.I just…[Read more]
Thanks David. I wish you the best also. Do hope you get to see all grandchildren graduate from college. My goal was to see them all graduate from high school. Made that goal in June. I am 81 and have had a blessed life. I am amazed every day st how wonderful life can be