Biography

Name

Roger Spence

Nickname

roger-spence

Year of Birth

1948

Gender

Male

Location

California

Short Bio

I’m a 75 year old retired clinical social worker who was diagnosed with ILD in March 2022.

I am being followed by a pulmonologist at Kaiser Northern California.  I have been on Cellcept since June 2022.   Have had a complete workup including a lung biopsy and they still do not have a more refined diagnosis.   Will have another  HRCT scan at the end of the month.  Exercising regularly.  It’s been a huge adjustment as I have always been very healthy and physically fit. Looking forward to joining this forum.

Type of Diagnosis

IPF

Treatment / Medical Facility

Kaiser Medical Center – San Rafael ,California

Current medication regimen

Cellcept, Prilosec

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

Exercise, healthy diet, supplements, positive attitude, social support, medication,

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

1 year

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