Randy

Hello Lynn, Just read your introduction to your new life. Yes, it is challenging. I was diaganoised in 2020. It was thought it was Covid, so that is how they treated it. That was completely wrong. At the 3rd hospital, there was an surgeon who took one look at me and said she knew what my problem was and she would see me the next day in surgery.…[Read more]

Goodmorning everyone and Happy Easter. Been setting here reading all the postings about the DLCO scores and thought I might add my 2 cents. The last test I had was 06/21/2022. I was suppose to have had one again in Dec. of 2022, but had some heart problems so didn’t have one. However my results from the 06/2021 where not very good.  My DLCO was…[Read more]

Good evening everyone. Read everyone’s input here on the Inogen5. When I got out of the  hospital in 2020 after 4 months in there, I  was on the cylinders. As everyone knows, they are a pain to get around with and only last about 2 hours. So, I bought an Inogen5 because I was told it went to 6. My lung doc said it doesn’t really. Since it is p…[Read more]

Good afternoon everyone. Reading all these comments, you have pretty well covered everything I was going to say. The Inogen 5 is fine if you only need about 3 or 4 because the #6 is not really a #6. It is still only going to put out about 4. Wish there was a continues that was protable. I have had to go back on the  cylinder because of my…[Read more]

Good afternoon everyone. This is an interesting subject that Robert has brought up. In  2000, when I was  given the great news after 5 months in the hospital. I left there on about 4l and using cylinders. They were so hard to get around with, I bought an Inogen 5 that is suppose to go to 6. Well, my lung doc says it is actually 4. I have been u…[Read more]

Grady, Thank-you so much for your information on your dad and the final moments. I started to cry because I just picture him doing as you say he did. It is me all over. I have been trying to not see the end, but there comes a time when it is going to happen. We can all pray and say it won’t happen, but it will. I just hope I am like your dad and…[Read more]

Good  afternoon Grady,

My name is Randy and read your story with great interest as I am on my 3rd year of IPF. I have been on oxygen all this time, 24/7. I left the hospital after a biopsy to make a determination on what I had. I had lost 1 lung already and the other isn’t in great shape.The liters have slowly increased over the past year. I…[Read more]

Hello again Jeff. The Inogen I have now is a replacement for my original. That one went nuts and quit working even after I put new columns in. The bells an whistlers work just fine. No figures and the little lights work everytime I breath. I tried the Inogen as I drive or ride and then the tank when I get out of my truck but th Inogen just didn’t…[Read more]

Natalie. Read your posting about using a machine will driving and then the cylinder when getting out of the car. I am working on that now. I went to the bank today and used the Inogen till I got there. Then switched to a cylinder. The Inogen just doesn’t work anymore, even just setting or driving. I only had to drive a bout 5 miles but I was…[Read more]

Hello again everyone. Just thought I would put another 2 cents worth back in. The Inogen and I have split company. Yes, the pulse system is pretty worthless when you are on high output. I found this really the hard way last week. I was shopping at Walmart, with the Inogen, and suddenly got spots in front of my eyes. I didn’t have my sunglasses on…[Read more]

Hi Gloria. I live in western Colorado near the Utah line. We don’t get much snow because we are considered desert, but boy does it get cold. This morning was 19 degrees and right now it is 29. I was out for a couple minutes this morning to feed the animals and that’s that.

Take care and keep your lungs covered to protect yourself.

Forgot to add. If out more then 2 minutes, your air line freezes and you have a heck of a problem getting back into the house. It doesn’t want to bend.

Michelle, it’s very important. You lungs are very fragile now and can easy give way to a bad  cold which can turn into pneumonia. My doc said so cover my noses and mouth when going out in the cold. So I have a cloth mask I use to get to the car or just out to feed my pets that are outside. I only have 1 lung, so it very important for me not to get a cold.

Good afternoon everyone. This has been an interesting to read what people have observed at the end of a love one. We have all thought about and wondered our selves as to how it will be. I have always been told that I would sufficate. Then I was told by my doc that in hospice, I would be made comfortable, like many have explained. I have now been…[Read more]

Hello everyone. Hope you all had a good Thanksgiving. The cold and being out in it. I really try not to be. It really messes up your lung when the cold hits it. If I have to go out, I have a cloth mask I’ll put on to get thru the cold air. But I have to be quick. With only 1 lung, I have to be real careful. It I should get a cold, it would turn…[Read more]

Hello Charlene and other post members. I had listed my inhalers on another post you had the other day, but will do the same here. After being diagnoised with IPF in 2020, I was put on Flovent HFA. It worked for about 2 years and then it started to not be so good. So, my lung doc added another inhaler, Ipratropium. It has been doing pretty good. As…[Read more]

Hi Charles. Read your entre and thought you sound a lot like me. I live at 4500 ft, on the Colorado, Utah line. It is considered high desert but just to the east of us start the mountains. They gradually go up until your at Silverthorn at 12,000. I was diagnosed in March of 2020 when I couldn’t get my breath, sweating like crazy. It took 3…[Read more]

Hello everyone. Hobbies. I used to h ave a hobby that I started when I was 8 years old. I made model cars. At one time  I had over 100 but in my travels, I have given some of them to people I met and liked. I still have over 25 of the best ones including my first. I made my last one about 3 years ago. Then when IPF  was diagnoised, I wasn’t sure w…[Read more]

Natalie,

Your problem is one that most of us have that have this thing called IPF. After diagnoised and then getting out of the hospital after 4 months in 2020, I used oxygen cylinders that put out 4 at that time. It was very oxward trying to get around with them and only having an 1 or so. I bought an Inogen 5 that is suppose to go to 6. It…[Read more]