Biography

Name

Al Shuckra

Nickname

al-shuckra

Year of Birth

1940

Gender

Male

Location

West Hartford, Connecticut

Relationship

Patient

Short Bio

Diagnosed with IPF in 2013 after lots of coughing.  Doing OK (used supplemental oxygen at night) until Jan. 2019 acute exasperation.  Now on O2 continually @ 6LPM.  Had a bout of subcutaneous emphysema (crespitus) [looked like I had the mumps again] which could have been quite serious if not dealt with quickly.

Type of Diagnosis

IPF

Treatment / Medical Facility

University of Connecticut Health Center

Current medication regimen

Prednisone, Pirfenidone (thru Canadian pharmacy)

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

It’s at its worst when the sinus has mucus build up adding to the post-nasal drip.  I use NeilMD Sinus Rinse and a mucus cutting mouth wash.  Pursed lip breathing technique helps stop the gasping and return to normal breathing; sometimes it takes a long time and lot of effort.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

6 years

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