[Shumita Ralli]

Thanks Both, for your response and advice. I’ll keep you posted. Regards

Shumita

[Shumita Ralli]

@charlene Thanks, yes we tried low dosage 🙁

[Shumita Ralli]

Morning All

Ron, Charlene, Andy, Steve, extremely grateful for your inputs on this forum.

@drandyhall , thanks for sharing the links re stem cell research. Disappointed to read about the scams but still hopeful that we’re on the brink of something from a credible source soon.

Now researching the recently FDA approved PRM151. Unfortunately my dad has not tolerated nintenadib and our options at this time are non existent.

Stay well, stay strong!

regards

Shumita

 

 

 

 

 

[Shumita Ralli]

Hi All

Thanks for sharing such valuable information. It’s encouraging to find out about potential cures which are in r&d.

i read recently that a clinic in Mumbai has had some success with stem cell therapy which helps rejuvenate scar tissue. Sadly my dad’s pulmonologist has advised against this as he’s uncertain about the quality of the research in unknown clinics in India. He has however recommended that I continue to explore stem cell therapy as an option for my dad in the western world.

if anyone has any pointers on stem cell therapy research, please let me know. I’ll be back in Australia shortly where I will continue to seek out more information. I’ll share in this forum as I find out  more.

Best wishes.

[Shumita Ralli]

Hi Katie and Charlene

I’m new to this forum with my dad having been diagnosed with IPF two weeks ago. Before that he seemed fit as a fiddle and was brisk walking ten kms daily. Two weeks ago he came back breathless from his walk and since the diagnosis we suddenly have new words in our vocabulary such as IPF and Nintedanib which we didn’t know existed. My mom’s beside herself and hilts dad is being very brave, I can’t begin to imagine what’s going through his head. He’s gone really quiet and my sister and I are trying our best to help him keep cheerful.

Katie, thanks for sharing your story – your dad sounds just like mine – a trooper and a hero.

All the very best to both of you. Regards

Shumita