Forum Replies Created

  • Sylvia Scott

    Member
    July 5, 2018 at 12:45 pm in reply to: Putting Yourself First as a Patient with Pulmonary Fibrosis.

    To use plain words….It is horrible! I have been such an active woman. I have had a one lung transplant 13 years ago and I am on oxygen full time. I have other medical problems bu doing well right now. My left leg is paralyzed and I broke the same ankle and since can’t walk at all. My husband is wonderful but I so want to help him. He is on duty day and night.

    I still teach a Sunday Bible Class and keep up with friends. It is hard to put yourself first, even when you can’t walk.  

     

     

     

     

     

     

     

     

     

  • Sylvia Scott

    Member
    April 24, 2018 at 4:17 pm in reply to: Have you ever used liquid oxygen?

    Yes, I have always used liquid oxygen from 2002.  I finally got a portable concentrator to take when I travel. I even took the liquid on a cruise. It seems to be so smooth. It is just that the doctors don’t find out about it. More and more providers are phasing liquid out because it is too hard to manage.

     

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