Forum Replies Created

  • Tammy Ansley

    Member
    March 9, 2023 at 5:12 pm in reply to: Life span

    I was diagnosed in March of 2018, but I’m pretty sure I had it for a few years before that. I’m currently considered ‘Stable’ and on 2L of O2 resting. I will be turning 60 on the 27th of this month. I know that every person is different. I also have other health issues I’m dealing with along with the IPF.

  • Tammy Ansley

    Member
    March 9, 2023 at 5:12 pm in reply to: Life span

    I was diagnosed in March of 2018, but I’m pretty sure I had it for a few years before that. I’m currently considered ‘Stable’ and on 2L of O2 resting. I will be turning 60 on the 27th of this month. I know that every person is different. I also have other health issues I’m dealing with along with the IPF.

  • Hi all, I live near Topeka, Kansas and of as yet, have not found a local support group. I’ve joined a couple online support groups through facebook, but would really like to find a local group. As for medications, I was on Ofev for about a year (was diagnosed March 2018….that was my birthday present…yay me…..) I had horrible side effects with the medications to the point I was afraid to leave my house. My Pulmonary doctor switched me to Esbriet a few months ago, and it’s made a world of difference. I’m no longer afraid to leave the house now! I recently found out that I’m extremely anemic and will be starting iron infusions on the 24th of this month. Also having a procedure on the 18th to make sure I have no internal bleeding which could be the cause of the anemia. I basically have no energy at all, I’m on 2l of oxygen at rest & 4-5 when up moving around, sometimes I dont think its quite enough, because of the anemia, but hopefully with the infusions I’ll get some if not all my energy back. I hate sitting at home alone all the time because I have no energy to go anywhere. Anyway, thanks for listening to my rant…lol Blessed Be….Tammy