@tammyjbell1972
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Tammy replied to the topic Heart/pulse rate in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
It is strange to me because i don’t ever feel breathkess. I mean i feel likeni breath heavier at times but never breathless. My heart rate goes up after eating. It feels like i cant take a deep breath. My symptoms started suddenly 7 months ago. I was put on a blood thinner and after the 2nd week i was sitting on the couch and my heart started…[Read more]
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Tammy replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 2 years ago
How do they determine at what stage of the disease can you be considered for a transplant??
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Tammy replied to the topic Heart/pulse rate in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
Can Pulmonary Fibrosis cause high and low heart rate????
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Tammy replied to the topic Heart/pulse rate in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
My HR elevates only when I stand up and walk. It reduces quickly when I sit. Sometimes to low 50s. My oxygen goes up when i stand and walk. The only time it has gone down is during a tredmill tsst.
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Tammy replied to the topic Digital Clubbing in Pulmonary Fibrosis Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
When does clubbing start? I mean I am sure everyone is different but would you or could you notice it right away?
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Tammy replied to the topic Digital Clubbing in Pulmonary Fibrosis Patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
What does it look like? I mean I’ve seen it on google but is that really what it looks like
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Tammy posted a new activity comment 2 years, 1 month ago
I always read about the shortness of breath. How would you describe that? Does it get worse? I mean, could it get better over weeks or months?
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Hi Tammy,
Shortness of breath is pretty noticeable. It feels like you can’t get enough air, like when you exercise hard, but when you are just sitting still. It can feel like a tight chest, but also feels really urgent, like you need to breathe more to get enough air. You may feel faint, exhausted, etc. Breathing generally becomes much faster,…[Read more]
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Tammy posted a new activity comment 2 years, 1 month ago
I do have heart palpitations
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Tammy posted a new activity comment 2 years, 1 month ago
No other symptoms
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Tammy posted a new activity comment 2 years, 1 month ago
When I try to reply it tells me I’m posting an inappropriate word
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I do have heart palpitations
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Hey Tammy, would mind sharing what you were trying to post when you got this error message? I’m going to forward it to tech support to see if there’s a bug somewhere that’s blocking you. Thanks
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Tammy and
Charlene Marshall are now friends 2 years, 1 month ago -
Tammy posted a new activity comment 2 years, 1 month ago
I tried to have someone refer me to a place to learn how to breath. I’m not sure if I can get into one without a diagnosis.
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Tammy posted an update 2 years, 1 month ago
So I am still trying to find an answer as to why I cant take a deep breath without trying or sotting down. I’m so scared. I do not know what to do. I feel like these symptoms consume ne.
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Hi Tammy, are you doing any pulmonary rehab? Breathing exercises? I know there are lots of PF-related reasons why it could be hard to take a deep breath, which your doctor should help you investigate. Sometimes stress also adds an additional layer to that problem. If you are consumed by the worry of the symptoms, that anxiety might be constricting…[Read more]
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I tried to have someone refer me to a place to learn how to breath. I’m not sure if I can get into one without a diagnosis.
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You might be right. Let me backtrack a little bit, I assumed you had been diagnosed already, my apologies.. Do you suspect you have IPF? What types of doctors have you seen and what tests have they run? How long have you felt this tightness that prevents you from taking a deep breath? Do you have other symptoms?
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When I try to reply it tells me I’m posting an inappropriate word
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I do have heart palpitations
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Hey Tammy, would mind sharing what you were trying to post when you got this error message? I’m going to forward it to tech support to see if there’s a bug somewhere that’s blocking you. Thanks
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No other symptoms
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I always read about the shortness of breath. How would you describe that? Does it get worse? I mean, could it get better over weeks or months?
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Hi Tammy,
Shortness of breath is pretty noticeable. It feels like you can’t get enough air, like when you exercise hard, but when you are just sitting still. It can feel like a tight chest, but also feels really urgent, like you need to breathe more to get enough air. You may feel faint, exhausted, etc. Breathing generally becomes much faster,…[Read more]
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Tammy became a registered member 2 years, 1 month ago
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Welcome to the forum Tammy, we are happy you’re here!
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Interesting… Mind if I play detective? (insert reminder that I am not a medical professional) Do you have any digestive symptoms? Like nausea/vomiting, full feeling, distended belly, diarrhea or consitpation?