@tarzan
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Tony Buxton replied to the topic Portable Oxygen Concentators in the forum Diagnosis Information and General Questions 1 year, 6 months ago
google “Aliexpress” then search oxygen concentrators. you can get a pretty good one for about $300 including cost of shipping. get at least 02 flow of up to 6 lt minute
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Tony Buxton posted an update 1 year, 11 months ago
Just had a CT scan. The fibrosis is still mild with not much changed from 18 months ago . however they found suspected lung cancer. They want to do a bronchoscopy at the same time they said that I was too old for any treatment. pulmonologist said that I wouldn’t die of lung cancer but more likely of COPD. Of course the question is now why should…[Read more]
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Tony Buxton posted an update 2 years ago
I was 89 two days ago. Still surviving mild pulmonary fibrosis not taking any medication year. But COPD is bad. To celebrate my birthday I am offering all my books free of charge as an e-book on Amazon. The one about free diving have a lot about my suffering from terrible Asthma when I was young and how I survived. The link Google Tony Buxton’s books
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Hello Tony, Charlene and me thank you on behalf of all the pf forum members. Such a kind gesture. I hope you have a wonderful Sunday. Breathe easy Sir. Mark
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Tony Buxton replied to the topic Have you tried a Salt Room? in the forum Diagnosis Information and General Questions 2 years, 8 months ago
I moved from an inland town to a small unpolluted beach. my house is only about 250 yards from the beach. When is a seabreeze I go down to the beach and inhale the salty air.
after moving to the beach a lot of my respiratory problems improved. I would think that if the wind is coming from the sea and you breathe it you must be getting salt in…[Read more]
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Tony Buxton replied to the topic Book Club in the forum Hobbies & Projects 2 years, 12 months ago
I have just seen the movie “When breath becomes air. “I found it very interesting and somewhat astounding that the diver lives so long with virtually no air. I, unfortunately, lost three of my divers over 15 year period. So I could relate very well to the story. Some similar ones are in my book “Freediving to fame and fortune”. Available…[Read more]
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Tony Buxton replied to the topic Book Club in the forum Hobbies & Projects 3 years ago
At the age of nine , I developed very severe asthma. It was in 1940 during the last war. There was no cure of any kind. Bronchodilators were unheard of. Every night I held onto the bedstead trying to force air into my lungs until I passed out with exhaustion. I couldn’t play games. I couldn’t go to school, I was very weak and thin and at the age…[Read more]
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Tony Buxton replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years ago
Why don’t you buy from India online. It’s made by the same people Boehinger under the generic name pirfenidone. They send it by EMS for $20 and you should get it within a week. I don’t think there’s any problem in importing medicine for your own use and many in the US use Canadian online pharmacies, which simply source all their supplies from,…[Read more]
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Thom and
Tony Buxton are now friends 3 years, 1 month ago
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Tony Buxton posted a new activity comment 3 years, 1 month ago
At last I have managed to obtain an appointment with a pulmonologist this coming Thursday. The hospital she works is two hours away and I have found someone to drive me there and back.
At least I will know about the fibrosis stage and if I should take the pirfenidone or not.
I am hoping it’s the latter because the thought of taking another nine…[Read more] -
Tony Buxton replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 2 months ago
Pirfenidone is an alternative. Buy online from India its genuine and $0.25 cents.
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Tony Buxton posted a new activity comment 3 years, 2 months ago
If anyone is interested , just Google pirfendone, India.
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At last I have managed to obtain an appointment with a pulmonologist this coming Thursday. The hospital she works is two hours away and I have found someone to drive me there and back.
At least I will know about the fibrosis stage and if I should take the pirfenidone or not.
I am hoping it’s the latter because the thought of taking another nine…[Read more]
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Tony Buxton posted a new activity comment 3 years, 2 months ago
Thanks very much for the advice. Anyone can buy the medicine online from India. I use PayPal and got 500 tablets sent me EMS within a week.
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I am sure this information will help many of our forum members. Thank you
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If anyone is interested , just Google pirfendone, India.
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At last I have managed to obtain an appointment with a pulmonologist this coming Thursday. The hospital she works is two hours away and I have found someone to drive me there and back.
At least I will know about the fibrosis stage and if I should take the pirfenidone or not.
I am hoping it’s the latter because the thought of taking another nine…[Read more]
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Tony Buxton posted an update in the group
Research and Development 3 years, 2 months agoI tried to follow everything about IPF and the Internet and read all the news. Unable to see a pulmonologist where I live, I sent my high-resolution CT chest scan to an online pulmonologist in India. He confirmed I have indications of the beginning of early stage fibrosis. This confirms the technician’s description of mild fibrosis. He highly…[Read more]
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Hello Tony and welcome to the forum, you are very lucky to be able to purchase Esbriet for that price. My suggestion would be wait and meet with your pulmonologist before you start the meds. I was on OFEV which is similar to Esbriet in that both drugs may stop the progression of the disease. My disease was more advanced when I was prescribed.
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Thanks very much for the advice. Anyone can buy the medicine online from India. I use PayPal and got 500 tablets sent me EMS within a week.
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I am sure this information will help many of our forum members. Thank you
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If anyone is interested , just Google pirfendone, India.
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At last I have managed to obtain an appointment with a pulmonologist this coming Thursday. The hospital she works is two hours away and I have found someone to drive me there and back.
At least I will know about the fibrosis stage and if I should take the pirfenidone or not.
I am hoping it’s the latter because the thought of taking another nine…[Read more]
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Tony Buxton joined the group
Research and Development 3 years, 2 months ago -
Tony Buxton started the topic Confirming the diagnosis of IPF in the forum Diagnosis Information and General Questions 3 years, 2 months ago
A routine x-ray indicating possible interstitial lung disease. So I had a high resolution CT scan.
The scan was examined by a technician from whom I received a report. However, I think I need to seek a pulmonologist who is familiar with rare lung disease, but there are none around where I live in Thailand. I’m too old to go to, Bangkok, whic…[Read more]
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Tony Buxton replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 3 years, 3 months ago
Susan
I buy generic ESBRIET online from India at $0.25 a tablet. -
Tony Buxton posted an update 3 years, 3 months ago
I have just become a new member. I hope I can help other members and also I can get help for myself at the same time. My problem is that there are no pulmonologists near where I live and really am too old to make the five-hour trip to the nearest city. I had high-resolution CAT scan and the results given me by a technician. But obviously, I need…[Read more]
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Hi @tarzan (Tony),
Thanks for joining the PF forums and welcome again! This is such a wonderful group of people here, so welcoming and supportive. I hope you find it helpful and I have no doubt that sharing our experience will help others too! The information on how you obtain Esbriet, when you’re right, the cost can be so prohibitive to others,…[Read more]
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Tony Buxton became a registered member 3 years, 3 months ago
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Welcome to the PF forums Tony. Thanks for joining us!
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Hello Tony, it saddens me to hear your story. I feel you are a brave man for sharing your story. I’m sure whatever decision you make will be the right one. Take care, Mark.