Russell Jalbert

In case you missed this article on this site. Mentions some of the current research toward a cure. None yet here are in human trials though.

Top 10 Pulmonary Fibrosis Stories of 2021

Joe,

Isomnia not been a problem for me on either drug.
<p style=”text-align: left;”>I hope this is helpful, and here’s to a better 2022 for us all!</p>
Russell

Hello Jofac, from Cape Fear USA. I am 69 and awaiting double lung transplants.

Keeping in mind that every one is different, disclaimer made, here’s my experience with both OFEV and Esbreit.

After 30 months on OFEV I had to quit it. The gastric distress was just too too terrible. Lost a lot of weight, 30+ pounds and my appetite. When I again…[Read more]

I can make these recommendations, and I am 69. I lost a bunch of weight (30+ pounds) for the transplant team this way:

1. Using the My Fitness Pal app – every day I track EVERYTHING I eat and drink in the Daily Diary. Set a weight goal and target date, and the app will give you you daily calorie amount. The basic app is free, and an upgrade is…[Read more]

My side effects, so far, have been minimal :-), however as this article shows, side effects may increase (or decrease) over time. I’m just 4 months…[Read more]

Hello Lnour, I started Esbreit in March 2021 after 15 months on Ofev. I am VERY glad I did because my GI problems have been dramatically reduced. It was so bad (10-15 x per day) , I was thinking of just giving up on the IPF meds. My Pulomonolgist suggested trying Esbreit First, and I have been extremely grateful to her. I’ve not experienced any…[Read more]

Hello Lnour, I started Esbreit in March 2021 after 15 months on Ofev. I am VERY glad I did because my GI problems have been dramatically reduced. It was so bad (10-15 x per day) , I was thinking of just giving up on the IPF meds. My Pulomonolgist suggested trying Esbreit First, and I have been extremely grateful to her.