After my diagnosis I researched IPF and found that many of us live with it longer than
much of the literature shows. One of my daughters is a nurse and was with me when we
got the diagnosis. She has been quite helpful in explaining this disease to the other
adult children. They all took the news like adults. I think partly because I’m
81 and have survived 4 heat attacks, a 5 way bypass, 3 bouts with 3 different cancers and
a number of other maladies and am still here. I guess they figure IPF is not going to
take me down very soon as long as I’m careful. So.. I’d say that if your children are
adults they will probably take the news ok. I think its better to let everyone know
so they won’t feel so much pain if the end comes quickly and they wish they had known
while you were still here. Remember when you start each day that yesterday is gone
and tomorrow may never be yours.
Tim J.