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Terry Neu

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@tneu

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    Steve Dragoo and Profile picture of Terry NeuTerry Neu are now friends 1 year, 11 months ago

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    Terry Neu replied to the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    Thank you everyone for your responses. Kathryn, I am so sorry for your loss, you will be in my thoughts and prayers. I will ask the doctor for numbers next I see him in October. Last time I saw my Pulmonologist he had me do a 6 minute walk test and I passed with flying colors. I told him my oxygen can sometimes get down to the mid 70’s if going up…[Read more]

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    Terry Neu replied to the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    Thanks, Bill.  It sounds like your experience is pretty similar to mine.  No, I do not have a Spigometer and you mentioning it is the first I’ve ever heard of one.  I will ask about it at CVS the next time I’m there.  One of the bad things about this disease, you never know when an episode is going to happen.  Then soon after you’ll be coas…[Read more]

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    Terry Neu started the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    Has anyone out there have or had a shortness of breath, tightness of feel in the lungs but normal oxygen readings? My readings are normally in the mid 90’s and can get to the mid 80’s on my daily walk. I was diagnosed in March of 2019 with IPF and see my Pulmonologist twice a year. He just tells me I have not declined since my last visit and I…[Read more]

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    Terry Neu replied to the topic Eating Heart Healthy Foods While Self-Isolating in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago

    Thank you for the suggestion. I will try that.

  • Profile picture of Terry Neu

    Terry Neu replied to the topic Eating Heart Healthy Foods While Self-Isolating in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago

    I have struggled eating healthy all of my adult life. I like fruits and vegetable but dislike salad, and salad is what all the experts push. Its very frustrating and stressful. My Pulmonologist wants me to lose some weight and I am trying. I am seeing a dietician but she just throws a bunch of papers at me and tells me to follow these rules. I was…[Read more]

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    Terry Neu became a registered member 2 years, 11 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 11 months ago

      Hello Terry, thank you for joining your pulmonary fibrosis forum. Welcome!

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