Tom Moeglein
Forum Replies Created
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Gosh you are so very young! No fair for you to have this disease. Feel so sad for you. Me? I’ve had a wonderful life, two sons, two grandchildren, two great grandkids.
I think that the lung Tx makes sense if there is enough quality time left on this earth. For sure it would be the option for you. The medical folks have much more experience now with rejection drugs, with the actual procedure and the recovery. Researchers worldwide are working to find a cure for IPF. Hopefully a cure can be found soon. I will do a Tx as soon as I can get approved. I have always been a fighter. I’ll fight on for a while longer. I did another CT scan today and see my hero…my pulmonologist doc next week again. Will see what the scan shows and seek her advice. Her name is Mary Beth Scholand and she has made my life so much better. She is the top pulmonologist at the U of Utah Hospital. A great hospital, one of country’s top ten for past nine years. Perhaps you have heard of the Huntsman Cancer Institute? It is part of that hospital. Thanks for your thoughts. Are you on a Tx list?
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I did have an afternoon with the transplant surgeon last week. She feels I am not sick enough yet to be listed. As this IPF progresses I’ll be going back to her. At my age-74-I may be getting too old to be eligible. Thank you Charlene for your reply.
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Normalcy. Gosh I wish. Needing oxygen to stand, to walk, to shop, for chores. No normalcy. Try hard not to get depressed but for my own personality IPF, I cannot be normal anymore. For over 50 years I’ve been involved with motorcycles. Have ridden in most states and many foreign countries. Had to give up my two wheel Harley and now have a Harley trike. I can handle the oxygen on it. I so dread the day I have to give that up too. Can’t hunt or hike with my son anymore. Spend too many days housebound. Sorry for the downer.