Forum Replies Created

  • tom-hartigan

    Member
    July 12, 2022 at 2:58 pm in reply to: Why do IPF patients lose weight and how to help

    I’ve been on Ofev 150 mg since 10/21.  I had serious issues with diarrhea and weight loss which troubled me and my family.  I added an ensure to my daily diet but it decreased my appetite.  I noticed my weight loss came after each bout of diarrhea.  My pulmonologist has recently moved me to the 100 mg of Ofev and so far so good.  No diarrhea, better appetite and I’ve gained 4 lbs.

  • tom-hartigan

    Member
    May 11, 2022 at 1:11 pm in reply to: Traveling long distances

    My pulmonologist had me take a High Altitude Stress Test to determine if I could fly without supplemental oxygen before my first cross country trip.  I was cleared to fly without and I just felt better knowing.

  • tom-hartigan

    Member
    December 7, 2022 at 2:59 pm in reply to: Why do IPF patients lose weight and how to help

    I believe that the trials were done at 150 but I couldn’t handle the diarrhea.  My pulmonologist said that the 100 would be as effective on the scarring.