Forum Replies Created

  • Antonia Jensen

    Member
    May 9, 2022 at 5:16 pm in reply to: Wrestling with the End Stage of Pulmonary Fibrosis

    Why do we wrestle with this issue? Why can’t doctors take the time to give us answers? I too wonder just what my end will be like. Of course we all wish that it is without pain and peaceful, perhaps in our sleep. I don’t understand the medical community’s  reluctance to talk about this. Knowing would give us all so much more peace of mind in our daily lives!

  • Antonia Jensen

    Member
    March 22, 2022 at 2:20 pm in reply to: Wrestling with the End Stage of Pulmonary Fibrosis

    I was diagnosed a year and a half ago with NSIP, fibrotic version, and now use oxygen on exertion. Since I live alone, I have had to think about this question often since both of my adult children live a good distance away. I have already completed my advance directive, basically a DNR, use only morphine. I think at the end we shouldn’t stint on that, since drug addiction would be the last thing anyone would worry about. Hospice has very good protocols for that sort of thing and we ought to trust in it, for no other reason then it can give peace of mind nowadays.