tony grundy
Biography
| Name | tony grundy |
| Nickname | tony-grundy |
| Year of Birth | 1945 |
| Gender | Male |
| Location | N.E. Ohio |
| Relationship | Patient |
| Short Bio | Diagnosed in early 2015, confirmed as moderate/severe in fall of 2015. Am an ex smoker from early age but quit cold turkey at 9pm December 30, 1999. Have had a spontaneous pneumothorax in both lungs years ago. Drink beer, too much in some peoples eyes, but I’m English so it’s a lifestyle and all I’ve got left. Trying to find any studies that look back at possible causes, work, environment or anything that ties us all together or at least might create some sub-groups. Have found nothing so far, but find it hard to believe that the companies researching this horrible disease haven’t looked into this route. |
| Type of Diagnosis | IPF |
| Treatment / Medical Facility | PCP |
| Current medication regimen | Ofev, 150 twice a day, plus loperamide to counter the side effects. |
| Lung transplantation status | considering later |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | I am fighting going on oxy because after a few bought of pneumonia found I as relying on it and want to avoid this as long s possible, my doctor does not agree, but it’s not his lungs. My body will fight for me, it can cure anything it wants, just have to get my brain to listen and turn on the right switches. |
| Are you currently taking an anti-fibrotic medication? | yes |
| How did you find us? | PF News Website |
| How long have you or the person that you are caring for had PF? | Almost 4 years |
| Privacy Policy and Terms of Use | I agree |