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  • One more thing to add to my post about preventing or combating diarrhea.  My pulmonologist told me to not be afraid of taking the Imodium.  She said to start out taking it regularly and then see how I reacted.  So for the first 3 weeks, I have taken 1/2 Imodium with each OFEV and it has worked really well for me — no diarrhea at all – – it has no…[Read more]

  • I am wondering how common it is for the OFEV to cause blood pressure to rise?  I’ve been on OFEV just about 3 weeks now and in the past 4 days, my BP is going up.  It’s the weekend so I’m not going to panic and call urgent care .. .just took some baby aspirin and will contact the doc on Monday.  But is this common?  My BP has been in a very goo…[Read more]

  • I have been taking OFEV 100 mg for 3 weeks and am doing better than I anticipated.  I normally have a very sensitive stomach, so I was prepared for the worst — stocked up on plenty of Imodium, saltines, gingerale, etc etc. I think because I have dealt with IBS in the past, I might be a little more familiar with helpful supplements than most…[Read more]

  • Thanks for the helpful hints!  I’ll let you all know how it’s going soon!

  • I will be starting OFEV this week.  Of course I am a bit anxious just thinking about all the potential side effects, but I want to get going on the drug so that I can get into a routine, know what foods work best, etc.  My doctor is starting me out on the lowest dose possible, just 100 mg once a day, to make sure I tolerate it.  Does anyone fi…[Read more]

  • Libby Fisher posted a new activity comment 1 year ago

    Thank you Mark. I’m really happy to find the forums and find so much information, suggestions for coping and succeeding ! I haven’t even received my first Ofev shipment yet, after a switch between specialty pharmacies who are approved by my insurer. Lots to learn and I’m glad for all the ideas here!

  • Libby Fisher became a registered member 1 year ago

    • Hello Libby, we are delighted to have you as a member of the pf forum. Welcome!

    • Thank you Mark. I’m really happy to find the forums and find so much information, suggestions for coping and succeeding ! I haven’t even received my first Ofev shipment yet, after a switch between specialty pharmacies who are approved by my insurer. Lots to learn and I’m glad for all the ideas here!

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