Biography

Name

U. Samarakoon

Nickname

u-samarakoon

Year of Birth

1955

Gender

Male

Location

Alberta, Canada

Relationship

Patient

Short Bio

Retired Civil Engineer. CT Scan in April 2022  says I have UIP.  Two PFTs were done in April and August 2022. August one shows an improvement to the readings. Pulmonologists suggested to do another one in six months time and see the results before taking any medications.  Second CT scan was done in May 2023 and found that  no change in my conditions over one year period.

Type of Diagnosis

IPF

Treatment / Medical Facility

Approval to use Esbriet received. Not started yet.

Current medication regimen

Not started yet

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

I believe regular exercise will help to keep your lungs healthy.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Diagnosed in April 2022. I had a cough for more than six months. No other symptoms. Recent X-Ray shows scarring in the lungs. CT Scan confirmed the UIP.

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