I was diagnosed in 2017 with IPF and went on Ofev. I lasted less than a year on Ofev as the side effects outweighed my sense of benefit. Several years later I went on Esbriet but after many months I felt a sense of daily fatigue I associated with Esbriet, hence stopped it.
I am now feeling a great sense of breathlessness which is accelerating and am about to restart Esbriet.
Tonight, July 13, 2023 at 7 pm EDT Noah Greenspan is hosting a 90 minute forum on “Shortness of Breath, Best Breathing Techniques, and Recovery from SOB! I registered and encourage you who can fit the time schedule to do the same. We may learn something new! All the best, Bob