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  • Wally Wilson

    Member
    February 19, 2022 at 3:37 pm in reply to: “Breathless” Transplant News

    Russell,

    Maybe my story will give you some encouragement.

    I had a single lung transplant seven years ago after being diagnosed with IPF.  I had been on the wait list for six weeks.  I was 78 years old at transplant, way over the age limit, but  in good health otherwise, except for some cardiac issues (I had a heart attack  6 years before, and had 3 stents).  Methodist Hospital in Houston decided to take a chance with me. I spent ten days in the hospital, including three in ICU, after transplant.  I am now 85 and have had an almost textbook perfect recovery.  However, skin cancers have been a problem due to the anti-rejection drugs;  I’ve had 30+ Mohs procedures, but am now working with a Dermatologist who specializes in transplant patients with skin cancers. I’ve needed no O2 since leaving the hospital.  My O2 saturation runs around 96-97% and I am living a perfectly normal life. I play some golf, do woodworking and stay active including Pilates twice a week.  Life is good.  I hardly ever even think of my transplant, other than when I take my 36 pills a day!

    I think a good attitude is a critical element in recovery outcomes.  It is important to stay positive and aggressive in dealing with the many issues  that you will be forced to deal with. Listen to the docs, do exactly what they tell you to do and don’t hesitate to ask any questions you may have.  I have a good support system and I hope you do as well.  That’s critical.

    I  know we are all different, and I also know I have been very blessed.  But I just want you to know there are many good outcomes.  So keep the faith and trust your docs.

    I’m well past my “sell by” date.  That’s why the first thing I say when I wake up is “Thank you, God, for another day”.  Without Him and the transplant team, I wouldn’t have another day.

    Peace and good luck.