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John Fraze replied to the topic Oxygen Delivery System when needs go up in the forum Diagnosis Information and General Questions 3 weeks, 6 days ago
You might want to try a humidifier to relieve some of the nose dryness. Also spray her nose with saline solution as it will clean her nose, prevent infection and relieve dryness in her nostrils. Best of luck.
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John Fraze replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 5 months, 2 weeks ago
I have an Ogen one G5 that goes up to 6 LPM.
Good luck. They are pricy.
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John Fraze replied to the topic CONFUSED BY LATEST LUNG FUNCTION RESULTS in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 1 week ago
The numbers can change for a variety of reasons. The temperature, humidity, state of his health such as a bad cold or just the sniffles.
The percentage of oxygen in the air is the same but cold dry air is much more compact than warm moist air so in summer it’s much easier to breathe in cool air conditioning than outdoors in warm humid air.…[Read more] -
John Fraze replied to the topic Good Saturated Oxygen Levels Yet With Labored Breathing in the forum Living with Pulmonary Fibrosis: 50+ 8 months ago
I have two types of oxygen concentrators. One is continuing flow and the other is a pulse flow. I don’t know what you have but when you use a pulse flow machine breathing fast actually slows it down. The instructions with mine say not to breathe fast or deeply as that interferes with the rhythm of the machine. Just to turn the number of liters u…[Read more]
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John Fraze replied to the topic Good Saturated Oxygen Levels Yet With Labored Breathing in the forum Living with Pulmonary Fibrosis: 50+ 8 months ago
Check your filters on your oxygen machine. You might need to clean them.
check to see if your medical records show any stenosis in your pulmonary veins that run from your lungs to your heart. There are four of them. If you have had a heart ablation there is a possibility your pulmonary veins have stenosis. A symptom of this is shortness of…[Read more] -
John Fraze replied to the topic Need to start all over in the forum Esbriet (Pirfenidone) 10 months, 2 weeks ago
I just read that it is coming out in generic. It didn’t say when it would be available to get an Rx for the generic version but I assume it should be soon. They will need some time to get the manufacturing process going and then the actual distribution to pharmacies. Ask your doctor or pharmacy when it will be available.
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John Fraze replied to the topic COVID ON TOP OF IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 4 weeks ago
I am 84 years old. I have had two shots plus a booster. And a flu shot every year for probably 30 or 40 years. I was diagnosed wit IPF in November 2018. I have been taking Ofev since January 1, 2019.
I contracted Covid-19 either late January or early February of 2022. Symptoms were mild as were my wife’s. We both tested positive with a home kit t…[Read more]
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John Fraze replied to the topic Dealing with Side Effects in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 1 week ago
Has anyone experienced the effects ofev has on nose bleeds? I’ve been having considerable difficulty with nose bleeds lately. A nose bleed every day for 10 days. They have taken me off eliquis and ofev temporarily until the bleeding issue is resolved.
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John Fraze replied to the topic Ofev and anticoagulants in the forum Diagnosis Information and General Questions 11 months, 3 weeks ago
I have IPF and Afib, I Have been taking OFEV since January 1, 2019 (almost 3 1/2 years.) I have had 4 ablations for AFIB since 2009. I have been taking eliquis since then. When I started taking OFEV they cut my eliquis from 5 mg twice a day to 2 1/2 mg twice a day. I also take flecainide 50 mg twice per day for my AFIB. So far so good. Hope this…[Read more]
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John Fraze replied to the topic Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis Information and General Questions 1 year, 5 months ago
My cardiologist has forbidden me to take Benadryl. I have a fib
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John Fraze replied to the topic abdominal cramps with Ofev in the forum Ofev (Nintedanib) 1 year, 5 months ago
I have been on OFEV for almost 3 years. I take 150 mg twice per day. At first I had minor abdominal cramps and still do. I started have diarrhea to the extent it was aggravating so I started taking Imodium. It controlled it somewhat. I started taking one every other day and it helped some. I changed to one every day and and that helped even more…[Read more]
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John Fraze replied to the topic Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis Information and General Questions 1 year, 5 months ago
Remember the formula for water is H2O.
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John Fraze replied to the topic Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis Information and General Questions 1 year, 5 months ago
I have found that the ipratropium helps a lot.
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John Fraze posted a new activity comment 1 year, 6 months ago
I recently purchased a portable oxygen concentrator. It weighs 5.7 pounds with a double battery, with a single battery it weighs only 4.7 pounds. It comes with a shoulder bag that allows you to carry it. It is also certified to use on commercial airliners so now I can fly again. They are expensive, mine costs $2665. No tax, no shipping costs. So…[Read more]
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John Fraze replied to the topic End of Life in the forum Diagnosis Information and General Questions 1 year, 6 months ago
I feel so bad for that lady and have great fear of putting my wife through something similar. I’m 84 and she is 81. We have been married 63 years and dated 3 years before getting married. I was diagnosed in November 2018 and on OFEV since January 1, 2019. Doing pretty well so far.
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John Fraze became a registered member 1 year, 6 months ago
Welcome to the forums John, thanks for joining us!