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William E. Shotts replied to the topic Lung Biopsy in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 1 week ago
I agree with the numerous comments urging caution when considering a lung biopsy. I received a diagnosis of IPF in October of 2020. My pulmonologist and I began the discussion of treatment. One of my concerns at that time was “are you sure of the diagnosis” to which my pulmonologist replied “the only way to be absolutely sure is to have a lung…[Read more]
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William E. Shotts replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 months, 1 week ago
Here are my answers concerning my Ofev experience:
1. I started Ofev about 6 months after my October 2020 diagnosis.
2. I was not told at that time about the severely of my IPF. I had a surgical biopsy soon after and learned I did indeed have IPF showing mild to moderate progression.
3. Choosing Ofev was my decision as the Doc indicated…[Read more]
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William E. Shotts replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 2 weeks ago
I’m interested. Forward details and time.
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William E. Shotts changed their profile picture 1 year, 9 months ago
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Steve Dragoo and
William E. Shotts are now friends 1 year, 9 months ago
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William E. Shotts replied to the topic Disabled Identity Crisis & Accommodations in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
To you my fellow travelers on this uncertain and scary journey we call IPF I say thank you for your stories, they help me to deal with the issues I face. I am a 73 year old who was diagnosed with IPF in October 2020. Until then I was very active in my business as well as numerous outside activities. I live in Colorado at an elevation of 77…[Read more]
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William E. Shotts joined the group
Research and Development 1 year, 11 months ago
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William E. Shotts replied to the topic Has anyone tried Stem Cell therapy? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
I am very interested in Jerry’s post. I am also a veteran. I receive some care through the VA. However, for my IPF I receive care from National Jewish in Denver Colorado. My VA physicians were not as callous as Jerry’s but they were very supportive in my seeking care elsewhere. Since I am VA documented agent orange exposed I have pressed the VA f…[Read more]
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William E. Shotts became a registered member 2 years ago