Sara Tanner

Thank you Mike! I also got that answer for our new Phillips SimplyGo Mini POC “that the filter will NOT  filter out COVID 19 virus particles!” My husband just got his, so it was all new to us.

So no symptoms until diagnosed with “pneumonia” not viral/bacterial etc. in Oct. 3019!! COVID-19?? Still don’t know?? Labor Day wk end became breathless ! 02 sat only 81% when standing!! Diagnosis 3-5 yrs life span!! Black & white!! Don’t think so! But recovery was amazing!! Now husband only using 2 ltrs 02 when sleeping!! Just got portable unit.…[Read more]

Thanks Steve! That is very valid concern! My husband just got approved for a POC this week! I will contact the manufacturer when we receive the unit.

We are very worried. So what happens if my husband or I contract COVID19 ? He is diagnosed with IPF & I have no health problems. If  he would get it & he’s not hospitalized & quarantined at home, how do we keep the other from catching  it?? If I would contract it & be quarantined at home, how would Zi keep him from catching it?  Woyld I need to fi…[Read more]

So while I’m  lucky enough to be working from home & “social distancing” with  my husband that has IPF , we’re getting creative with our time together at home. He is having Sports withdrawal! Ha Hooked up that Xbox that we never use & are doing stretching & NASCAR racing. 😉 We’ve scheduled dedicated movie time together utilizing our Netflix, A…[Read more]

I’m so sorry you are going through this! I can’t imagine how frustrating that would be!! My husband had absolutely no symptoms of cough & shortness of breath until a bad bout of pneumonia. He did have history of smoking for years, but had stopped 7 yrs ago. Xray only revealed small spot of pneumonia in one lung. He started as out patient at home…[Read more]

Oh my goodness! Pulmonary Rehab has been such a blessing with my husband’s IPF!! Gets him up & out the house three days a week. We are fortunate to have such a supportive and positive staff at our local hospital. He is up to almost 1 mile on treadmill & can tolerate stationery bike for almost 2o minutes! Medicare only pays for 36 weeks, but he can…[Read more]

Thank you so much!! IPF is new to us &  this interview answered and/or clarified many of our concerns & questions.

My husband has been on OFEV for 4 months with no major side affects. He is a beer drinker & his Dr said as long as his liver panels stayed in range, there is no reason he couldn’t drink beer on occasion. He drinks a couple at night. So far.. So good.👍

Also since his pneumonia is gone & taking OFEV , his PFT showed an increase from 62% to 87%…[Read more]

My husband has been taking 150 mg 2 x day since November 3, 2019. He’s tolerating it well. His diagnosis was on Oct. 1, 2019 of moderate IPF & severe Emphysema after a bout with pneumonia. CT showed “ground glass”/hardening of lung tissue in upper quarter of both lungs. The retail price was $10,500 month. We were referred to OFEV OPEN DOORS…[Read more]