Forum Replies Created

  • Wijay

    Member
    August 15, 2023 at 2:30 pm in reply to: OFEV cost and assistance

    I believe Esbriet which is equally effective is now sold as generic at much lower cost. I am on Medicare and my monthly copay for OFEV is $680

  • Wijay

    Member
    June 8, 2023 at 9:26 am in reply to: Sodium Pyruvate

    Not to discourage anyone, I just read the report and the big improvement from from 52% to 86% is for the ratio of FEV1 (Forced exhalation in 1 sec) over FVC (forced exhalation achievable).  FVC is the true measurement of IPF severity.  The ratio shows that FEV1 increased significantly but the improvement of FVC is not discussed.  Clearly it did not improve as much as FEV1, there is a chance it improved only marginally.  We need to get more details of the results