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  • Hi All,

    Doctor Salzberg, Yvonne and Charlene:

    Thank you for all your help during my initiation to OFEV. It’s been just over 3 months since I started. I have learned so much. I am not nauseous anymore!! I do occasionally get diarrhea but if so I take an Imodium and it stops it. I believe that my body needed to adjust to this med.

    My doctor…[Read more]

  • Jane replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 7 months ago

    Hi Doctor Salzberg,

    Thank you so much for sharing your experience with me. I am going to start to keep a food journal to better understand the reactions to what I have been eating. I have been so concerned with avoiding diarrhea that I stopped eating salad and many veggies and I am wondering if this has contributed to my hair loss. I do need to…[Read more]

  • Charlene,

    Thank you for your immediate response, I am impressed with your timing on your reply and appreciate your advise.

    I have already ordered the air products and will buy a satin pillow case.




  • Hi everyone,

    This is my first post. I have been on Ofev 150 mg 2x’s a day for 2.5 weeks so far and am tolerating it well. I ave to say I has a lot of anxiety about this medication but after a diagnosis of IFP I knew I must take it and I am thrilled that I can tolerate it.

    I just googled hair loss and Ofev as I have been noticing a lot of hair…[Read more]

  • Jane became a registered member 10 months, 1 week ago

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