Jane

Hi All,

Doctor Salzberg, Yvonne and Charlene:

Thank you for all your help during my initiation to OFEV. It’s been just over 3 months since I started. I have learned so much. I am not nauseous anymore!! I do occasionally get diarrhea but if so I take an Imodium and it stops it. I believe that my body needed to adjust to this med.

My doctor…[Read more]

Hi Doctor Salzberg,

Thank you so much for sharing your experience with me. I am going to start to keep a food journal to better understand the reactions to what I have been eating. I have been so concerned with avoiding diarrhea that I stopped eating salad and many veggies and I am wondering if this has contributed to my hair loss. I do need to…[Read more]

Charlene,

Thank you for your immediate response, I am impressed with your timing on your reply and appreciate your advise.

I have already ordered the air products and will buy a satin pillow case.

Best,

Jane

Hi everyone,

This is my first post. I have been on Ofev 150 mg 2x’s a day for 2.5 weeks so far and am tolerating it well. I ave to say I has a lot of anxiety about this medication but after a diagnosis of IFP I knew I must take it and I am thrilled that I can tolerate it.

I just googled hair loss and Ofev as I have been noticing a lot of hair…[Read more]