Forum Replies Created

  • Tim Ortiz

    Member
    January 4, 2022 at 3:45 pm in reply to: Prospective change of meds: OFEV to Perfenidone

    I switched from OFEV to Esbriet,  I learned to mitigate the nausea by taking the pill mid-meal.  I slowly tested exposure to the sun to see if I would have a reaction and do not.  I bought SPF rated shirts to wear and have made adjustments to wear hats on sunny days, but still no side effect.  I have oxygen level average at 88% and will supplement with oxygen when exerting.  I will remain active but have to have a day of rest following.  Hour long conversations will tire me.  I do have to snack between meals, paying attention to diet asI am diabetic.  I have been stable for 10 months on Esbriet.

  • Tim Ortiz

    Member
    October 27, 2021 at 7:43 am in reply to: Alcohol & Anti-Fibrotics (OFEV & Esbriet)

    I have elevated liver enzymes and do not usually drink alcohol however one dinner date I had two cocktails and regretted it. I had liver pain and felt awful that night I am on Esbriet. I also suspected I was a little dehydrated. Staying hydrated seems to be a big deal for me. I stopped using oxygen at night since I would dry up, being at 88 on my oximeter.