I am regularly subjected to stories of trauma. Part of my role as a therapist is holding space for clients to disclose difficult situations and helping them to process distressing events in their lives. Thankfully, in my experience, it seems that a growing number of people are becoming comfortable with…
Living With IPF — Charlene Marshall
Charlene Marshall is a fiercely independent 30-something-year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.
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Exercise is important for people with chronic illness. But as someone living with idiopathic pulmonary fibrosis (IPF), a disease characterized by progressive scarring of the lungs and difficulty breathing, I know working out is easier said than done. I’ve also found some strategies that make it easier for me.
I’m in the business of validating people’s feelings. As a therapist, I’m called upon to listen actively to clients and validate how difficult a particular situation has been for them, even as they work through it. I enjoy this part of my work because everyone is affected in unique ways…
Traveling is complicated with a chronic illness. When you require supplemental oxygen to breathe or struggle with hypoxia on airplanes, things become even more challenging. This has been my experience with idiopathic pulmonary fibrosis (IPF). IPF is a life-threatening and progressive lung disease that often leads to…
When people first think about disease or disability, they usually go to the physical symptoms — understandably, since they’re the most visible. But a chronic illness can affect all aspects of life. The emotional, social, mental, and financial implications can be grueling for patients, too. As a patient diagnosed…
Grief is one of the more complex emotions we experience. In my practice as a therapist, I regularly support people who are grieving, and I have a variety of therapeutic ways to respond to someone who is processing loss. The most common strategy is to validate grief’s myriad effects on…
Living with a chronic illness like idiopathic pulmonary fibrosis (IPF) is a multifaceted endeavor. It’s hard to fully describe just how many aspects of life the disease affects. Despite writing about it for seven years, there’s always something new I want to share with this community, because…
Living with a chronic illness is a lot of work. Sometimes I liken it to a full-time job because it requires so much daily effort. Medication administration, doctor appointments, and symptom tracking are just a few responsibilities associated with disease management. Prior to my diagnosis of…
Idiopathic pulmonary fibrosis (IPF) is a complex disease that leads me and other patients on a complicated trajectory. Not only do I deal with its physical difficulties, such as acute exacerbations and oxygen dependency, but I also wrestle with its emotional and social complexities. Since being diagnosed…
Note: This column describes the author’s own experiences with Dupixent (dupilumab). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Idiopathic pulmonary fibrosis (IPF) is progressive, which means this lung disease inevitably worsens, making it increasingly difficult for patients to…
Not having control over a situation is one of the worst feelings; I wouldn’t wish it on anyone! Unfortunately, many patients living with chronic illness often feel this way, and we just have to learn to live with it. Following my 2016 diagnosis of idiopathic pulmonary fibrosis (IPF),…
I have learned a lot about idiopathic pulmonary fibrosis (IPF) over the years. Following my diagnosis in 2016, I read everything I could about this life-threatening lung disease through online forums, research articles, and various websites. My biggest takeaway was that disease progression is nonlinear and looks…
When I first began experiencing symptoms of idiopathic pulmonary fibrosis (IPF), my condition worsened quickly and kept me from doing many activities I enjoyed. And yet, it took 13 months for me to receive a diagnosis. This time frame felt like an eternity and left me and…
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