https://vimeo.com/169925324 Pulmonary fibrosis is a disease in which tissue deep in your lungs becomes thick and stiff, or scarred, over time. Most of the time, the cause of how it develops is unknown and in these cases, it’s called idiopathic (unknown cause) pulmonary fibrosis. In this video, shared by the Institute…
IPF and Health Care Policy: Values of Patients and Society
A study from the Centre Hospitalier Universitaire de Liège at Sart Tilman recently reported that two growth factors, IGFBP-1 and IGFBP-2, are increased in the blood of untreated patients with idiopathic pulmonary fibrosis (IPF). People receiving treatment had lower IGFBP-2 levels that those who were not treated, indicating the factors might be…
Patients with idiopathic pulmonary fibrosis (IPF) often exhibit cardiovascular manifestations that affect patients’ morbidity and mortality according to the study”Cardiac manifestations of idiopathic pulmonary fibrosis,” published in Intractable and Rare Diseases Research. The authors reviewed evidence that links cardiovascular diseases to IPF and how the co-morbidities…
For people who live with idiopathic pulmonary fibrosis (IPF), traveling is not impossible, but it involves determined precautions and preparations. Traveling by plane can have respiratory implications so it is important that patients contact the airline beforehand to prevent any problems, as explained in this video by Professor Carlo Vancheri…
https://www.youtube.com/watch?v=axuIDgf1hkE Pulmonary fibrosis (PF) is a respiratory disease characterized by the formation of scarred tissue in the lungs, specifically in the air sacs known as alveoli. However, being a rare disease that affects about five million people throughout the world, pulmonary fibrosis is often away from the spotlight, which leads to…
What is idiopathic pulmonary fibrosis (IPF)? IPF is a rare lung disease in which tissue deep in your lungs becomes thick and stiff, or scarred, over time. This scarring of the lung tissue causes IPF patients to experience severe difficulties in breathing among other serious symptoms. In this animated…
The Pulmonary Fibrosis Foundation (PFF) is a 501(c)(3) nonprofit organization focused on fighting pulmonary fibrosis (PF). But how did it all start? The brothers Albert Rose and Michael Rosenzweigh, PhD, watched their sister suffer from the rare lung condition, and they ended up being diagnosed with it as well,…
https://vimeo.com/169933079 Pulmonary fibrosis is a disease in which tissue deep in your lungs becomes thick and stiff, or scarred, over time. Most of the time, the cause of how it develops is unknown and in those cases, it’s called idiopathic (unknown cause) pulmonary fibrosis. In this video, shared by Institute of…
The Germany-based global pharmaceutical company Boehringer Ingelheim recently announced the establishment of a research alliance with the Harvard Stem Cell Institute (HSCI) to discover new targets for treating fibrotic diseases, such as chronic kidney disease (CKD), nonalcoholic steatohepatitis (NASH), and idiopathic pulmonary fibrosis (IPF). The collaborative project, called Harvard Fibrosis Network, is…
1. Aoife Clancy Musician Aoife Clancy was famous for being a member of the band Cherish the Ladies. On September 6th, 2002, she lost her father to pulmonary fibrosis after a three-year struggle with the disease. Aoife and Bobby Clancy had a close relationship as he was the one that…
