5 Pulmonary Fibrosis Questions for Your Doctor


5. “Am I eligible for any clinical trials?”

Speak to your doctor to see if there are any clinical trials that you might benefit from and that you are eligible to join. Clinical trials help scientists better understand diseases. They work toward improved medications and treatments — and ultimately, a cure.

Read some of the most frequently asked questions about clinical trials here.

Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


  1. Marilyn Delahoussaye says:

    I was diagnosed with Pulmonary Fibrosis about a year ago. I will be 80 years old in October. I am not on any medication. My daughter (44) is adamant that I have the “good”. kind of PF, and asked my pulmonologist, and she looked a little scared and shook her head. Everything I read says “IPF”. Are there indeed. 2 different types.????? Thank you very much!!!!!!!

  2. Jean Rossi says:

    My 80 years old mother’s GP then went on to lie outright to my Mother in front of me regarding her condition!! Informed consent seems to have gone out of the window here in the UK under the NHS. Different condition – but one would wonder why a Doctor might start shuffling, humming and erring [seen here] and dissembling or looking uncomfortable? Luckily I had training regarding the [different] condition but, of course, my working class East End mother born in the 1920’s [historically intimidated by professionals and the supposed middle classes as her education was defined by WW2 and her submissive and dependent character was defined by evacuation and isolation away from family aged 13] was a likely victim to a Subordinate Syndrome. I was told in my late 20’s [1960s/70s] I have two chronic incurable conditions which were likely to lead to my death – finally and eventually – and all I could do was look after myself. Now aged 66 I expect the same honesty from the medical profession for me AND now deceased Mother who had what I had been trained to recognise as a terminal condition!! I also expect respect from 30 year old medical and legal professionals for people whose life and position have been defined by experiences in the early and mid 1950s. I knew aged 4-9 that my Grandfather’s childhood TB [1905/10] etc had lead to repeated bronchitis, which then lead to repeated bronchial pneumonia over a period of 5 years, which then lead to the expected cancer and death. I was fully aware as a 5 to 9 year old of the same development from birth or childhood cholera, typhoid, TB, polio, rheumatic fever, et al [endemic in London’s East End in the early to mid 20th Century] rheumatism, rheumatoid arthritis, scleroderma, fibrosis and leading to eventual death defined by quality of housing and poverty. I now find the Medical profession is overtly looking the other way or ignorant. There is no excuse for non disclosure to any patient. Even one who has sudden unexpected deterioration or accident as it deprives them of making their last wishes known under English Common Law. I had HIV and AIDS training in the early 1990s, I knew what I was seeing. For some reason in 2014/5 if you are aged over 60 is is called “age”!! Sorry to waffle. But if you think your relative is having information withheld from them and that therefore they are not aware of their true vulnerability and deprived of the chance to [re] organise theirselves or their estate through patronising medical professions all one can do is complain. There is no process in the NHS which would act speedily enough. Surely, we do not have to consult the legal profession about a GP withholding information from a citizen who has capacity to put their affairs in order and express their wishes – even as simple as I would like to see “Fred” my distance cousin!!

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