When people refer to a “support network” that surrounds someone with a life-threatening illness, you usually think of close friends or family members. In the past, you would rarely ... Read more

Before you can access the groups and discussions in our new Pulmonary Fibrosis News forums, you’ll need to sign up and create a profile. To do this, go to ... Read more

  In this photograph montage from Jason T. Beck called Celebrating Ricky Miller, we get a glimpse of the life of Ricky from Akron, Ohio, who battled idiopathic pulmonary ... Read more

There are a plethora of benefits for patients using online social media platforms. They help members of the community connect, and share and receive information about all aspects of ... Read more

Did you know that pulmonary fibrosis takes as many lives as breast cancer or prostate cancer? However, unlike breast and prostate cancer, there is no remission and treatment can ... Read more

For many people, using mindfulness as a means to eliminate or reduce stress is a new concept. It seems as though the importance of mindfulness is only now being promoted ... Read more

This video from Adam Karm titled “The Best Mom in the World” is all about the Packer family. Thirty-three-year-old Stephanie Packer was diagnosed with diffuse scleroderma in 2012 and now, ... Read more

For most people, a new year brings new opportunities and often, a strong desire to bring on changes and try to achieve new goals. Some make those goals about ... Read more

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of ... Read more

Although it’s changing in today’s society, it was previously presumed that someone with a disability was completely dependent on others. It’s quite common for people to think that because ... Read more