Woman With Pulmonary Fibrosis Creates Her Own Local Support Group

Being diagnosed with a chronic lung disease like pulmonary fibrosis can be overwhelming, and patients often feel isolated and alone.

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This was exactly how Debra Baldwin felt after she was diagnosed with pulmonary fibrosis in 2015. According to Fox8, the Burlington, North Carolina resident traveled 45 minutes to attend her nearest support group, but the journey became increasingly difficult as her disease progressed. When she was no longer able to attend, she found she missed the support and friendship she’d encountered at the group meetings so she decided to set up her own support group closer to home.

Debra set up the Just Breathe Pulmonary Fibrosis Support group in Burlington, where fellow PF sufferers can meet to share advice. The group meets every third Thursday of the month at the Alamance Regional Medical Center, from 6pm–7:30pm.

MORE: Six possible causes and risk factors for pulmonary fibrosis.

Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

4 comments

  1. Rhoda Engelbrecht says:

    It’s always so rewarding, (in a sense). To know it’s not in your mind, others feel exactly like you. Which one doesn’t discuss much. After all who wants to hear complaints about health. Until you’ve walked in those proverbial shoes, no one can realize the feeling. Almost enlightening to know, it’s not in my head, keep trying to will it away, just doesn’t work. Trying to play the comic, much like the opera, crying on the inside, laughing on the outside. Or almost taking it personally when all say, “you look so good”. Are they really meaning, “you’re faking it”? Am I being overly sensitive? Know so many times things taken out of context, quite a few controversies ensue. Many answers to one question, and all different. So we plod on each and every day, some better than some, tomorrow hopefully better!

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