Pulmonary Fibrosis Foundation Launch New Online Resource for IPF Patients and Caregivers

The Pulmonary Fibrosis Foundation has teamed up with ProPatient to launch an online resource for idiopathic pulmonary fibrosis (IPF) patients and their caregivers. The program called Partnering with Your Doctor provides educational information for anyone living with the disease or wanting to find out more about IPF.

MORE: Three useful resources for IPF caregivers. 

It also includes strategies for dealing with healthcare professionals and tips to help best manage the disease. Dr. Grey offers information on clinical issues, while Samantha and Kate guide you through everyday living with the condition with help from Rob, a patient with IPF and Sandy, a caregiver.

Topics such as pulmonary rehabilitation, traveling with IPF, oxygen therapy, palliative care, and supportive care are covered in the program, along with information about the disease, how it’s diagnosed and treated, and insurance coverage.

MORE: How to find support for pulmonary fibrosis. 

Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

3 comments

  1. Patricia A Edwards says:

    In reading this material I wonder what can be done to help surviving families of those lost to this disease as well as helping those who currently suffer from this awful disease. I feel that people should know more of this disease and that Drs. should be more honest with their patients who are diagnosed with it. I have seen what the patients and their loved ones face that no one knows about.

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