5 Ways Idiopathic Pulmonary Fibrosis Impacts Daily Life

Hobbies
People living with IPF are often forced to give up some of the things they enjoy doing as they no longer have the energy to continue with hobbies outside of the house.

Stigma
IPF patients can often be afraid to go out in public in case they have a coughing fit. Many felt that they were viewed as “contagious” and people wouldn’t come near them. Coughing was cited by many as the most embarrassing part of the disease and they would often try to muffle their coughs.

Relationships
IPF can be a lonely disease with many patients reporting the condition had impacted their relationships with family and friends. Socializing was problematic for many due to the physical restraints of IPF and others complained that they were not able to be active with their grandchildren.

Others were frustrated that because IPF is an invisible disease, people often don’t understand how ill they are.

MORE: Six ways to help you take care of your lungs

Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

6 comments

  1. Catherine Thompson says:

    We have a Disabled Parking permit due to my husband’s IPF. People do not see a disability and can be quite snarky about this. If he is not with me I do not use it as per the rules but it seems so petty some of the remarks I have heard. Sometimes the world is not a kind place.

    • Carolyn McGreevy says:

      Same thing here. The days I feel up to going out the handicap card is a lifesaver. I’ve had many looks and comments. It’s a tough thing to brush off.

  2. Monica Martin says:

    Every one of these is so very true about how my life changed. I have often said I should wear a shirt that says ” I am not contagious” Have quit going to movies and other places just in case I have a coughing spell. I can look back not and see how in the early stages long before I had any idea of what this was how it impacted my work life. Can’t do much if any housework without stopping and resting often and have little desire to bother people for assistance. Just keep doing what I can for as long as I can.

  3. Javed iqbal says:

    Suffering from fibrosis for almost a year, I miss the following in life:
    – I have been a golfer for a long time , cannot play anymore
    – cannot visit local mosque for daily prayers
    – miss my friends at Golf course and the mosque
    – my other passion is reading , cannot sit for long and read books
    But my attitude is to thank God Almighty for what I have rather than complain what I do not have- And, foremost, to have unshakable faith in God’s love and healing powers

  4. Javed iqbal says:

    I miss playing golf,visit to local mosque for prayers and my friends in these places. Also my reading books as cannot sit for long. But I continue to have Faith in God Almighty

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