Ofev (nintedanib) is an anti-fibrotic drug used in the treatment of pulmonary fibrosis (PF) to help to slow down the progression of the disease. It was approved by the FDA in October 2014.
The online patient platform Patients Like Me is a great tool for discovering how well other people with chronic illnesses are faring on various medications. It allows patients to document their experience with a treatment, including how effective it’s been for them, if they’ve had any significant side effects, what dosage they’re taking, and if they’re still taking the medication.
The site also allows patients to document other information which may be useful to fellow sufferers such as how expensive the medication is, how easy it is to adhere to the medication schedule, and what other medications they’re taking.
Sixty people with pulmonary fibrosis have added details about their journey with Ofev so far. Thirty-nine of those said they had suffered some side effects ranging from mild to severe. The most commonly reported side effects were diarrhea and decreased appetite.
Only nine of the patients had stopped taking Ofev with four of those stating the reason for stopping was that the side effects were too severe. The majority of patients were taking 150mg of Ofev twice a day and found adherence easy.
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