What Do You Fear Most About Having Pulmonary Fibrosis?


A diagnosis of pulmonary fibrosis can be terrifying and confusing and can often take a long time to come to terms with. In this video from EmpowHER, pulmonary fibrosis patient Dyane talks about what she most fears about the disease and how PF has impacted her life.

MORE: Find out more about how pulmonary fibrosis affects patients and their loved ones. 

Dyane says her worst fear is missing time with her grandchildren. She has eight grandchildren ranging from two to 16 years old, and she worries that she won’t get to see important milestones in their lives. She also worries that the younger ones won’t remember her. Dyane says one of her biggest fears is asking for help; she’s a proud woman who likes to get on with things on her own without assistance.

However Dyane is a positive lady, and she won’t let pulmonary fibrosis stop her or slow her down. She still works, travels regularly and has a fantastic outlook on life.

MORE: Read our list of nine ways to better manage your pulmonary fibrosis

Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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  1. Sandy says:

    Yeah, here’s my biggest fear – every time I get sick-er and end up going to the hospital, my thoughts race to ‘is this when I’m going to die?’ ‘Will I end up in hospice’? It’s the unknown that scares me.

  2. Chris says:

    I am interested in hearing from patients similar to me, who 30 years ago was diagnosed with Ulcerative Colitis, 25 years ago, Rheumatoid Arthritis, 1year ago GERD, Pulminary Fibrosis… now at National Jewish Hosp. With a great team of Docs…. sent me to Cardiologist – whose research shows I am 13 x more likely because of these disgnoses to have a heart attack in next five years. Have taken lisinuptil for years, which has controlled Blood pressure. Suddenly, last month, blood pressure is averaging 165/103. Cardiologist has doubled lisinupril, yet two weeks later blood pressure is same. I am interested in hearing from others with similar ptoblems, or those who have lost others eith same. I am quite honestly scared!

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