A single decision, likely made in a split second by someone I’d never met, saved my life. On the morning of July 9, 2021, I received a call that donor lungs were available for me, and my future went from impossible to possible. When I was diagnosed on Jan.
Protein linked to mechanical stress drives pulmonary fibrosis: Study
Last in a series. Read part one. When the tests to determine if I would be diagnosed with pulmonary fibrosis (PF) finally gave me clarity, I thought the hardest part of my journey was behind me. In reality, the diagnosis marked the beginning of a new chapter…
The U.S. Food and Drug Administration (FDA) has approved a generic version of Ofev (nintedanib) for easing lung scarring in people with idiopathic pulmonary fibrosis (IPF). The new generic nintedanib oral capsules, available in 100 mg and 150 mg dosages, will be marketed by Cipla. In a…
No one would voluntarily join the pulmonary fibrosis (PF) community. After all, who would want to be a part of the rare disease world? When I was diagnosed with idiopathic pulmonary fibrosis in January 2017, the idea of a disease-specific community seemed elusive. Most people I knew…
Mariners, for as long as their ships are at sea, rely on navigation skills to safely reach their destination. The tools and techniques they use have improved over time. While some ships may still post lookouts on occasion or use a lighthouse to identify hazards, the process of moving a…
My husband, Donnie, has been introducing our youngest daughter to the Marvel universe. Watching the movies together, I told her that she and Donnie are like Tony Stark, also known as Iron Man, because they both need a little mechanical help to keep their bodies working as well as possible.
A compound called orcinol glucoside (OG) can reduce lung inflammation and scarring in mouse and cell models of idiopathic pulmonary fibrosis (IPF), according to the findings of a new study, which suggests that OG could prove to be a treatment for the lung condition. The lab study results indicate…
“You have a condition called idiopathic pulmonary fibrosis, or IPF. There is no treatment or cure. You likely have three to five years to live. You should get your affairs in order.” What do you do with this information? How do you share it with others? This is essentially…
Treatment with Tyvaso (treprostinil) outperformed a placebo at preserving lung function and preventing clinical worsening — meaning, it led to gains beyond temporary symptom changes — among people with idiopathic pulmonary fibrosis (IPF) in the now-completed global TETON-2 clinical trial. United Therapeutics, Tyvaso’s developer and the study’s sponsor,…
