No one would voluntarily join the pulmonary fibrosis (PF) community. After all, who would want to be a part of the rare disease world? When I was diagnosed with idiopathic pulmonary fibrosis in January 2017, the idea of a disease-specific community seemed elusive. Most people I knew…
New generic of Ofev for IPF approved by FDA, slated for ‘immediate’ launch
Mariners, for as long as their ships are at sea, rely on navigation skills to safely reach their destination. The tools and techniques they use have improved over time. While some ships may still post lookouts on occasion or use a lighthouse to identify hazards, the process of moving a…
My husband, Donnie, has been introducing our youngest daughter to the Marvel universe. Watching the movies together, I told her that she and Donnie are like Tony Stark, also known as Iron Man, because they both need a little mechanical help to keep their bodies working as well as possible.
A compound called orcinol glucoside (OG) can reduce lung inflammation and scarring in mouse and cell models of idiopathic pulmonary fibrosis (IPF), according to the findings of a new study, which suggests that OG could prove to be a treatment for the lung condition. The lab study results indicate…
“You have a condition called idiopathic pulmonary fibrosis, or IPF. There is no treatment or cure. You likely have three to five years to live. You should get your affairs in order.” What do you do with this information? How do you share it with others? This is essentially…
Treatment with Tyvaso (treprostinil) outperformed a placebo at preserving lung function and preventing clinical worsening — meaning, it led to gains beyond temporary symptom changes — among people with idiopathic pulmonary fibrosis (IPF) in the now-completed global TETON-2 clinical trial. United Therapeutics, Tyvaso’s developer and the study’s sponsor,…
First in a series. If you’ve read my previous columns, you’ll know I live with lymphocytic interstitial pneumonia (LIP), a rare interstitial lung disease. What you may not know is how uncommon it is for LIP to progress into pulmonary fibrosis (PF), and yet, I am part of…
When my husband, Donnie, first became sick with pulmonary fibrosis (PF), we were unsure of the road that lay before us. His diagnosis finally came after specialized blood work and video-assisted thoracic surgery (and subsequent hospitalization). While we left the hospital with the answers we needed to begin treatment, he…
Trevi Therapeutics plans to launch two pivotal Phase 3 clinical trials to continue testing Haduvio (nalbuphine extended-release) as a treatment for people with idiopathic pulmonary fibrosis (IPF) who have chronic cough. A pivotal study is one in which results, if positive, are used to support applications for a…
