“It’s just a house.” I cannot tell you how many times I’ve said this to myself over the past few weeks. In my adult life, I have moved about 16 times, including four moves to the other side of the world. I have driven away from other houses without a…
Health Canada approves new oral treatment option for IPF and PPF
When my husband, Donnie, was diagnosed with pulmonary fibrosis in late 2022, I often felt extremely overwhelmed by all of the outside variables that could affect his health, such as cold and flu season. While I still feel worried and overwhelmed at times, I’ve found that staying as ready…
Admilparant, an experimental oral therapy being developed by Bristol Myers Squibb, slowed lung function declines among people with idiopathic pulmonary fibrosis (IPF) in a Phase 3 clinical trial. The study, ALOFT-IPF (NCT06003426), enrolled approximately 1,255 adults with IPF ages 40 and older. The trial was open to…
Boo! A diagnosis of idiopathic pulmonary fibrosis (IPF) or any other interstitial lung disease (ILD) can be scary. With Halloween approaching, October seems like the perfect month to talk about why. When I was diagnosed with IPF in January 2017, I knew nothing about the disease, but I…
I recently completed 18 sessions of pulmonary rehabilitation as part of my pulmonary fibrosis (PF) journey. While I expected it to be yet another attempt to give my lungs some much-needed attention, I didn’t anticipate meeting someone whose compassion and understanding would become such an important part of my…
Computer-based analyses of CT scans can help to predict future disease progression and track response to treatment among people with progressive pulmonary fibrosis (PPF), according to a new analysis of clinical trial data. These findings “suggest that quantitative CT methods can facilitate the prediction of clinically relevant outcomes and…
I am two days into another trip around the sun. Can you believe it? I didn’t. I’m still not sure how I feel about it. On Sunday, Oct. 4, I turned 69. I was 59 when I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017. I…
Lower activity of a gene called ZNF331 may help identify obstructive sleep apnea (OSA), marked by repeated stops and starts in breathing during sleep, in people with idiopathic pulmonary fibrosis (IPF), according to a new study by researchers in China. The team found that ZNF331 activity was lowest among people…
The past year has been particularly challenging for my husband, Donnie, as he navigates persistent muscle soreness and fatigue, along with his regular pulmonary fibrosis symptoms. Because autoimmune disorders ultimately caused Donnie’s pulmonary fibrosis (doctors suspect polymyositis, Sjögren’s disease, and scleroderma), it’s been difficult for him to discern if…
