Author Archives: Christie Patient

Caregiving Was a Catalyst to Telling Rare Disease Stories

I have several roles here at BioNews, the parent company that publishes Pulmonary Fibrosis News and other rare disease websites. I started with this humble column and eventually joined the forums team as a co-moderator. My most recently acquired title is “columns lead,” in which I manage and mentor…

Just Being Alive After Transplant Is Actually Enough

The pressure we put on ourselves to live full, “successful” lives can be debilitating. Transplant recipients can be burdened with extremely high expectations for what post-transplant life should look like. Organ transplantation is an incredible gift, but those expectations can cause a lot of emotional stress and guilt. Before I…

Facing IPF, Mortality, and a Future as an Only Child

Growing up as an only child, I’ve spent my whole life hearing what one Washington Post writer calls “a slew of profoundly unflattering and occasionally contradictory stereotypes.” I’ve been told many times how lucky I am that I don’t have to share my parents’ affection with siblings. Or…

Adapting and Moving Through Tough Days

In March 2019, my mom, Holly, got a second chance at life. Her bilateral lung transplant was a gift of the highest order. It saved and prolonged her life when nothing else would. It gave her body back the power to enjoy living. It restored her health and independence.

How to Make Your Event Safer for Vulnerable Guests

As soon as my mom, Holly, was out of the hospital following her bilateral lung transplant, our family began efforts to protect her immunocompromised body. Before she even got the call about available donor lungs, the University of California, San Francisco lung transplant team had educated my family…

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