Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their…
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It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his…
Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare…
People with rare diseases know that the right government policies can make a big difference in the quality of their…