1. Find Information About Pulmonary Fibrosis It’s normal for patients to be overwhelmed by a diagnosis of pulmonary fibrosis (PF). PF is a respiratory disease that causes scarring or fibrosis in the lung tissue, and in most cases the causes are not fully understood. Being a rare condition, it’s…
For people who live with idiopathic pulmonary fibrosis (IPF), traveling is not impossible, but it involves determined precautions and preparations. Traveling by plane can have respiratory implications so it is important that patients contact the airline beforehand to prevent any problems, as explained in this video by Professor Carlo Vancheri…
https://www.youtube.com/watch?v=axuIDgf1hkE Pulmonary fibrosis (PF) is a respiratory disease characterized by the formation of scarred tissue in the lungs, specifically in the air sacs known as alveoli. However, being a rare disease that affects about five million people throughout the world, pulmonary fibrosis is often away from the spotlight, which leads to…
The Pulmonary Fibrosis Foundation (PFF) is a 501(c)(3) nonprofit organization focused on fighting pulmonary fibrosis (PF). But how did it all start? The brothers Albert Rose and Michael Rosenzweigh, PhD, watched their sister suffer from the rare lung condition, and they ended up being diagnosed with it as well,…
1. Aoife Clancy Musician Aoife Clancy was famous for being a member of the band Cherish the Ladies. On September 6th, 2002, she lost her father to pulmonary fibrosis after a three-year struggle with the disease. Aoife and Bobby Clancy had a close relationship as he was the one that…
There are many shared risk factors for the development of the lung diseases pulmonary fibrosis (PF) and chronic obstructive pulmonary disease (COPD), but researchers of the two chronic conditions usually focus on understanding each disease separately. New research has found evidence that there may be a common genetic predisposition for the development of…
1. Bill Bright William R. Bright, best known as Bill Bright, is the co-founder of the largest Christian ministry in the world, the Campus Crusade for Christ. In 2003, he died from complications related to pulmonary fibrosis, as announced on his website. 2. Boyd Bennett The…
An Endowed Chair in Mining-Related Lung Disease was established at the University of New Mexico (UNM) Health Sciences Center to help miners fight medical problems associated with the occupation. The project is the result of efforts from the UNM and the Miners’ Colfax Medical Center (MCMC), and it was…
1. Medication Currently, two medicines are approved by the U.S. Food and Drug Administration (FDA) for patients with idiopathic pulmonary fibrosis (IPF). Both Esbriet (pirfenidone) and Ofev (nintedanib) became available in 2014. Taken orally, Esbiret is an anti-inflammatory and an anti-fibrotic drug shown effective in reducing inflammation and fibrosis simultaneously.
https://www.youtube.com/watch?v=JcZuUt8jXBI The average survival of patients with idiopathic pulmonary fibrosis (IPF) is between three and five years after diagnosis, and only 20% of them survive past this time. Like many others, Anita Hatfield struggled for three years with the disease and died last March from complications related to idiopathic pulmonary fibrosis.
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