Just Breathe...Compassionate Help for the PF Journey

d87dbd0122f8a05f8c93e6576ea24dfaKim Fredrickson was an Author, Blogger and Marriage and Family Therapist. She lived in Northern CA, with her husband of 40 years and had 2 adult children. Kim was diagnosed with Pulmonary Fibrosis in May 2014, as a rare complication from chemotherapy and radiation for breast cancer. Kim is the author of Pulmonary Fibrosis Journey: A Counselor and Fellow Patient Walks with You, The Power of Positive Self-Talk, and Give Your Kids a Break: Parenting with Compassion for You and Your Children. Kim believed that learning to advocate for yourself with kindness and compassion, just as you would for a good friend, makes this difficult journey a little easier. In her patient column on Pulmonary Fibrosis News, she offered practical ideas to help us care for ourselves, fight for what we need, and process our many-layered emotions. Kim passed away in 2019, but her inspirational work advocating for the IPF community continues to inspire and endure.

Read more of Kim’s writing at www.kimfredrickson.com

Putting Financial Affairs in Order

Part of facing that I have a terminal illness involves putting my financial affairs in order. I don’t want to leave my husband and adult children with the burden of having to sort out financial problems when I pass away. They will have too much to deal…

The Travails of Dealing with Supplemental Oxygen

I try to stay positive while also being realistic about the hardships that go with using supplemental oxygen 24/7. But this week I’m irritated and worn-out from the hassles I deal with daily. Here’s me being real. I’m tired of: Having to fight with my insurance and…

Getting Used to Being Disabled as a PF Patient

After being diagnosed with pulmonary fibrosis, I resisted seeing myself as disabled. My disease progressed quickly, and within two months I needed to use supplemental oxygen whenever I moved around. I used a portable oxygen concentrator in my work as a marriage and family counselor, even though it…

Options for Portable Oxygen Use Away from Home

Last week, I shared my thoughts about different oxygen options to use at home. This week, I’d like to pass on what I’ve learned about different types of portable oxygen possibilities to use away from home. The suggestions I’m sharing are based on my own experience, and I…

Options for Supplemental Oxygen at Home

Over the last two-plus years I have become an unwilling expert on the ins and outs of supplemental oxygen. When I started using supplemental oxygen I knew next to nothing and found it very hard to get the help and information I needed. I’ve learned a lot and…

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