Living with IPF — a column by Charlene Marshall

Charlene is a fiercely independent 30-something year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.

Close Friends Can Provide Valuable Insight When We’re Anxious

Friendships can change when chronic illnesses like idiopathic pulmonary fibrosis (IPF) enter the picture. Some might struggle to understand a friend’s illness, needs, and limitations. And the friend with the illness might change too, depending on how they cope. However, I believe true friendships can withstand these challenges, and even…

Why September Is Hard for Me as an IPF Patient

As a patient living with a chronic illness, I’ve become comfortable with people using clichés to try to comfort me. People naturally want to relate to others, but it’s often hard for someone who’s healthy to understand the experiences of a young adult who requires oxygen to breathe. One cliché…

Pulmonary Fibrosis Alters the Trajectory of Our Lives

Many significant milestones in life occur during young adulthood. Some may buy their first home, get married, and start a family, which is a typical trajectory. Unfortunately, idiopathic pulmonary fibrosis (IPF), a progressive and fatal lung disease, doesn’t care about typical trajectories. It unapologetically interferes with the lives of patients…

Technology Audit: An Updated List of Devices for Living With IPF

The Pulmonary Fibrosis News Forums offer a one-of-a-kind platform to learn about this life-threatening lung disease firsthand. Patients, caregivers, and professionals alike come together to discuss a plethora of topics pertaining to idiopathic pulmonary fibrosis (IPF). Many of those discussions focus on how to effectively manage the disease, and…